NEC Society Background
Who We Are
The NEC Society is the world’s leading nonprofit focused on necrotizing enterocolitis (NEC). We are led by patient-families, clinicians, and researchers to understand and prevent NEC so that babies and families never have to experience the devastation of NEC. Our mission is clear: to build a world without NEC through research, advocacy, and education.
How We Started
The NEC Society was launched in January of 2014 by Jennifer Canvasser after her son, Micah, died from complications of NEC just before his first birthday. Today, patient-families and experts from around the world work together to improve outcomes for the most vulnerable infants at risk of NEC.
What We do
There is much work to be done to prevent NEC. We are working tirelessly to better understand and build a world without this devastating disease.
NEC Symposium
The world’s largest and most influential NEC-focused meeting. We bring together clinicians and patient-families to advance research and quality care.
Biorepository
The NEC biorepository aims to support fragile newborns by advancing our understanding of necrotizing enterocolitis (NEC).
Research Incubator
A space for the NEC community to engage in research questions and collaborate from inception through implementation and evaluation.
Family Resources
Helping families understand the disease, navigate the NICU, and find support.
May is NEC Awareness Month
Our goal is for all states to declare May as NEC Awareness Month, and we need you as advocates, as supporters, and to raise awareness to #preventNEC.
Educational Materials
Resources for patient-families and clinicians alike to read and download for better understanding of NEC prevention, treatment, policy, and more.
