Family Ambassadors for a world without NEC
NEC Family Ambassadors help ensure patient-families are engaged, empowered, and elevated to amplify the organization’s impact for babies and families.
Teddy
NEC Family Ambassadors
Families affected by necrotizing enterocolitis (NEC) fuel the NEC Society’s work. The NEC Society integrates patient-families into its mission, and Family Ambassadors help ensure patient-families are engaged, empowered, and elevated to amplify the organization’s impact for babies and families.
Criterion to serve as a Family Ambassador
- Parent, family member, or loved one of an infant diagnosed with necrotizing enterocolitis, or were themselves diagnosed with necrotizing enterocolitis as an infant
- Agree to use their lived experience, skills, & unique perspective to advance the NEC Society’s mission on behalf of other families and the diverse NEC community
- Uphold the organization’s values, policies, and commitment to science, collaboration, and inclusivity
Family Stories
Family Ambassador Engagement Opportunities
- Complete PCORI Research Fundamentals Training
- Enroll in and participate in the NEC Registry
- Participate in NEC Awareness Month
- Pass a NEC Awareness Resolution in your state and/or engage in local advocacy efforts
- Invite your local NICU to use the NEC Society’s resources
- Connect with Ambassadors in your state
- Share your story, photos, and videos with the NEC Society and local media to raise awareness
- Participate in season-of-giving (end-of-year, Nov & Dec)
- Recognize significant anniversaries and/or life events by organizing a local event/fundraiser to raise awareness/funds
- Respond to NEC Society requests and invitations by requested dates
- Share the NEC Society’s resources, mission, and impact with your community
Family Ambassadors will:
- Be professional, respectful, and maintain a positive, growth mindset
- Use their experiences, insight, and skills to advance the NEC Society’s mission of accelerating NEC research, education, and advocacy
- Uphold the NEC Society’s values, policies, and strategies that center all patient-families to build an ever more inclusive community
- Inspire their community to support the NEC Society’s work
Family Ambassador Accountability: Ambassadors who do not uphold these responsibilities will be removed to ensure the NEC Society can continue to serve babies and families
Fueling the NEC Society's mission to bring together patient-families, clinicians, and scientists to advance NEC research, education, and advocacy.
About the NEC Society
The NEC Society is the world’s leading nonprofit dedicated to necrotizing enterocolitis (NEC). The NEC Society is led by a global community of patient-families, clinicians, and scientists. Together, we are accelerating NEC research, education, and advocacy, and transforming what is possible for infants and families.
The NEC Society was launched in January of 2014 by Jennifer Canvasser after her son, Micah, died from complications of NEC just before his first birthday.
