Leadership

Jennifer Canvasser, M.S.W.
Founder & Director
Jennifer Canvasser is the mother of a child who died from necrotizing enterocolitis and is the founder and director of the Necrotizing Enterocolitis (NEC) Society, as well as a member of the Chan Zuckerberg Initiative’s Rare As One Network. She completed her undergraduate studies at UCLA, earned her Master’s in Social Work from the University of Southern California, and is currently a part-time doctoral student studying medical sociology at UC Davis. Jennifer serves as an expert panelist for the California Perinatal Quality Care Collaborative, an advisor for the Patient-Centered Outcomes Research Institute (PCORI) Patient Engagement Advisory Panel, and co-chairs the International Neonatal Consortium workgroup on NEC. She has served as the project lead on three PCORI Engagement Awards.

Erin Umberger, M.Arch
Director

Erin Umberger is an Architect with undergraduate degrees in Biochemistry and Biology. In May 2014, Erin and her husband Ryan lost their baby daughter Sarah to NEC at two months of age. Erin’s loss has motivated her to be an advocate for preemies and their families. She lives in Phoenix, Arizona.


Board of Directors

Jacynta Brewton, MA
Jacynta Brewton lost her son to necrotizing enterocolitis in 2018. In addition to understanding the devastation of NEC, Jacynta is a major gifts fundraiser at Emory University, and the Editor-in-Chief and Chief Operations Officer for Emerge Woman Magazine. She has served as National President of the University of Florida Association of Black Alumni and Chair of the Council for Advancement and Support of Education’s Minority Advancement Professionals. Jacynta completed her undergraduate studies at Florida Atlantic University and earned her Master’s in Leadership from Shorter University.

Melissa Dlugolecki

Melissa Dlugolecki
After spending a decade in education, Melissa founded two businesses in areas of specialty that she studied after losing her daughter Leyden to NEC. Specializing in emotional intelligence/growth and gut health, Melissa is the CEO of Thrive with Mel-DL and Co-CEO of MOVE with Mooch&Mel. Through life coaching, she assists others feeling stuck make transition and transformation in their lives, regardless of circumstance. Additionally, she teaches holistic health and the application of gut health to help others have more energy, experience better sleep, and better performance. She is the host of the podcast, Grief, Guts and Green Smoothies and of all her titles, her favorite title is Leyden’s Mom.

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Linseigh Green 
Linseigh Green survived necrotizing enterocolitis as an infant in 1997 and discovered she had long-term complications from NEC when she was 16. As a sophomore at New York University, she became desperate to find a community for something she was experiencing in isolation. Not only did Linseigh find the NEC Society – who understood her— she found her voice. Now, she’s able to help raise awareness about the disease and advance the needs of patients. Of course, Linseigh is not just a patient. An alumna of NYU’s Gallatin School of Individualized Study (BA Social Impact Storytelling ‘19) and a current Creative Writing MSt student at the University of Cambridge, she is a devotee of stories that promote empathy within and between communities. Her experimentation with subject and form has led to projects such as an audio portrait on the racialization of real estate, a transmedia narrative on the social media panopticon, and an oral history dissertation scrutinizing the ethics of plantation resorts and weddings. In addition, she is an artist in residence at the Orchard Project’s Liveness Lab, a transmedia performance initiative.

Jolene Jacobs

Jolene Jacobs, MBA
Jolene Jacobs is the General Manager of Caliper Commercial Ingredients, a division of Caliper Foods. Prior to joining Caliper, Jolene had established a presence for herself as an award-winning medical marketing, sales, and operations professional known for leading with a passionate, entrepreneurial spirit and a keen focus on infant health & nutrition. Jolene was responsible for helping to start Evolve BioSystems, a spin-off from the Foods for Health Institute (FFHI) at the University of California, Davis, and launch their infant probiotic Evivo. She brings over 25 years of experience from leading retail, consumer packaged goods, and ingredient companies. A long-time supporter of the NEC Society, Jolene is thrilled to contribute to a world without NEC.

Adam Masin, Esq.
Adam Masin is a partner at the law firm Drinker Biddle & Reath LLP, and has a national practice representing physicians, Adam Masin is a partner at the law firm Drinker Biddle & Reath LLP, and has a national practice representing physicians, medical institutions, and pharmaceutical/medical device companies in negligence and product liability litigation. Adam represents Yale New Haven Hospital and Yale University, and he was the lead lawyer in the case involving a contaminated probiotic in a baby with NEC who tragically died.

Amena Mebane, Esq.

Amena Mebane, Esq.
Amena graduated from UC Berkeley with a BA in American Studies Honors with an emphasis in Race, Law and Social Movements. After completing her undergraduate studies, Amena attended the University of Washington, School of Law where she graduated Order of Barristers. She served as a Deputy Prosecuting Attorney for the King County Prosecutor’s Office in Seattle for five years doing rotations in the District Court, Felony Trial and Domestic Violence units. After moving back home to California in 2016, Amena has enjoyed her work as a mother, wife and estate manager. In January 2019, Amena and her husband lost their youngest daughter, Makenna, to NEC at 7 weeks old. Amena is hopeful to use her advocacy skills to help create a world without NEC.

Rebecca Meuninck

Rebecca Meuninck, Ph.D.
Dr. Meuninck is the Deputy Director for the Ecology Center, a Michigan-based non-profit working to protect human health and the environment. She has worked on environmental health and environmental justice issues for more than 17 years. Rebecca coordinates the environmental health work for the Ecology Center and the Michigan Network for Children’s Environmental Health and serves on the steering committees of several state and national environmental health coalitions. In the wake of the Flint Water Crisis, Rebecca was appointed by Governor Snyder to the state’s Child Lead Exposure Elimination Commission. Rebecca’s work centers around her passion for protecting children’s health. Rebecca holds a Ph.D. in Anthropology, with a graduate specialization in Gender, Justice, and Environmental Change from Michigan State University, and a BS from the School of Natural Resources and Environment at the University of Michigan.

Suzan Perez

Susan Perez, PhD, MPH
Susan Perez is a health services researcher. Her research brings together the perspectives of patients to inform the development of healthcare policies, information, and resources to promote high-value decisions. Prior to her appointment as an assistant professor at California State University, Sacramento, Susan completed a postdoctoral fellowship in quality, safety, and comparative effectiveness research and earned a doctorate in Nursing Science and Health-Care Leadership program at the University of California, Davis.

Lindsay M. Pollak

Lindsay M. Pollak, MBA
Lindsay Pollak is the head of global programs and analytics for McKinsey & Company’s Diversity and Inclusion function; she is part of a global team focused on developing strategy and implementing key initiatives to ensure that McKinsey develops, advances, and retains the best talent. She has extensive consulting experience focusing on organizational transformation and design. Lindsay has an MBA from Columbia Business School and a BA in international relations and a secondary major in economics from Stanford University. She lives in California with her family.

Jenny Quinn

Jenny Quinn, PhD, NNP-BC
Dr. Quinn is a Neonatal Nurse Practitioner at NorthBay Healthcare and serves on the Perinatal Quality Improvement Panel for the California Perinatal Quality Care Collaborative. Dr. Quinn has practiced neonatal nursing for 20 years and has cared for dozens of infants and their families who have been affected by NEC.

Hayley Rohn, Esq.

Hayley Rohn, Esq.
Hayley hails from Michigan and is an estate planning attorney at Hayley E. Rohn PLLC, an innovative virtual law firm. Hayley has an undergraduate degree from the University of Michigan-Ann Arbor and a law degree from Wayne State University in Detroit. She has worked as an attorney with families for over 10 years, and prior to founding Hayley E. Rohn PLLC, she worked for prestigious law firms in the Detroit area in their estate and tax planning groups before working at a large bank in their charitable advisory group. Hayley sees the NEC Society as an inspiring and effective organization, and is proud to contribute by serving among a distinguished Board of Directors.

International Advisor

Simone Rosito

Simone Rosito, MBA
Tom and Dani’s auntie, Simone holds a degree in Management and International Relations by the University of Aberdeen, a Masters in Middle East Politics, from the University of Durham and is currently specializing in Social Projects. With a long international career in Latin American Equities desks, Simone has lived in the UK and Australia and is a keen traveller with a taste for exotic locations. Her trips to places such as Syria, Bhutan and Algeria resulted in the book “Oh My Buddha” soon to be available in English and proceeds to be donated to Instituto PGG.

 

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