NEC: Long-Term Outcomes

What are the long-term outcomes of NEC? How does NEC affect children, families, and adult NEC survivors years after their original NEC diagnosis?

Our research project explored these questions. We are grateful to our patient-family community, who helped to build and launch this research project, and who took the time to share their family’s personal experience with NEC.

This research study was led by Jennifer Canvasser from the NEC Society and James Harrison from the University of California San Francisco.

If you have questions regarding this survey, please email jennifer@necsociety.org. Thank you!