Resources for Families Recently Diagnosed

Learning more about NEC can help you to advocate for your baby and make informed decisions. There is no one cause of this disease, and it is not your fault if your baby develops NEC.

BACKGROUND

Understanding NEC

Necrotizing enterocolitis (NEC) is an intestinal disease that primarily affects premature and medically fragile infants. NEC causes an inflammatory process that can lead to intestinal tissue damage. Learn more about this disease and the common questions.

Baby Cash Awake
Cash
baby Grace
Grace

BACKGROUND

Free Resource Box

We have created Family Resource Boxes to provide the information we wish we would have had at the time. Request your free resource box for recently diagnosed families today. 

RESOURCES

for NEC Survivors & their Families

Many babies recover from NEC without complications. Some babies recover but may experience long-term health and developmental issues. The NEC community is working to build more resources for families affected by this disease.

NEC survivor Ahmaari

Helpful Articles

This collection of articles is designed to support families, caregivers, and healthcare professionals in understanding necrotizing enterocolitis (NEC).

Dr. Hackam holding a baby in the hospital
“They don’t just suffer, they too often suffer alone.” Written by David J. Hackam, MD, ...
NEC Awareness Month cover
We chose May to be NEC Awareness Month because we will only build a world ...
Mother nursing newborn in the hospital
In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk ...
Micah Life Celebration
Created by bereaved parents for bereaved parents. What we wish someone had told us when ...
baby in the NICU
This story challenges the assumption that breast milk alone prevents NEC. It highlights the complexities ...
Jennifer Canvasser (Davis, CA), and Assemblymember Cecilia Aguiar-Curry
Sacramento, California – The Necrotizing Enterocolitis (NEC) Society is grateful to announce that California has ...