Resources for Families Recently Diagnosed
Learning more about NEC can help you to advocate for your baby and make informed decisions. There is no one cause of this disease, and it is not your fault if your baby develops NEC.
BACKGROUND
Understanding NEC
Necrotizing enterocolitis (NEC) is an intestinal disease that primarily affects premature and medically fragile infants. NEC causes an inflammatory process that can lead to intestinal tissue damage. Learn more about this disease and the common questions.
BACKGROUND
Free Resource Box
We have created Family Resource Boxes to provide the information we wish we would have had at the time. Request your free resource box for recently diagnosed families today.
RESOURCES
for NEC Survivors & their Families
Many babies recover from NEC without complications. Some babies recover but may experience long-term health and developmental issues. The NEC community is working to build more resources for families affected by this disease.
COMMUNITY
NEC Society Connects
A private FaceBook group to help parents connect with others who have been personally affected by necrotizing enterocolitis. This group is exclusively for patient-families and a safe space for those impacted by NEC. To be admitted, you must share how you are personally connected to this disease.
Helpful Articles
This collection of articles is designed to support families, caregivers, and healthcare professionals in understanding necrotizing enterocolitis (NEC).
