Resources for Bereaved Families
If you have lost your precious child, we hope you will find a sense of connection and community within the NEC Society. Our resources are built by families who have lost their own children to NEC, and reflect what we wish we would have known when our child passed away.
Support After Loss
Losing a child is one of the most profound and unimaginable losses a family can face. You are never alone when you join the NEC Society’s community. Every family’s grief journey is different and our resources are designed to help you navigate your path toward peace and connect with others who understand the depth of your loss.
Our Bereaved Family Resource Box was developed by bereaved families, and provides the information we wish we would have had when we lost our child.
The box supports families in the knowledge that they will always be their baby’s parent, and that their precious child will always be part of their life. Tree of Courage note cards and plantable seed paper, to plant in memory of their child, are also included. Request a bereaved family resource box.
More Resources Our Bereaved Families Have Found Helpful
- NEC Society Connects Facebook Group is a platform to help you connect with others who have been personally affected by necrotizing enterocolitis.
- Compassionate Friends is a support organization for families who have experienced the death of a child.
- The MISS Foundation provides resources to families who are grieving the loss of a child.
- Chasing the Rainbows offers support services for survivors living after infertility, pregnancy loss, and infant loss.
- Still Standing is a magazine for those experiencing child loss and infertility.
- A Bed for My Heart is a website providing “A Place to Rest Your Grieving Heart”.
- The Finley Project provides resources and support for those experiencing infant loss.
- Bereavement and breast milk resources provide information about what to expect with milk supply and options for those interested in milk donation.
Storybooks for Bereaved Families
- Forever Our Little One is a storybook for bereaved families, written by NEC Society’s founder/executive director, Jennifer Canvasser, after she lost her little one, Micah, to NEC.
- The Goodbye Book by Todd Parr
- Ida, Always by Caron Levis
NEC Society Connects
A private FaceBook group to help parents connect with others who have been personally affected by necrotizing enterocolitis. This group is exclusively for patient-families and a safe space for those impacted by NEC. To be admitted, you must share how you are personally connected to this disease.
Articles by the NEC Society
This collection of articles is meant to support you, help you navigate your grief, and offer solace through the stories of others who understand the depth of your loss.
