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Latest from the NEC Society

The latest updates and developments, family stories, and helpful resources for clinicians and patient-families.

Ronan

Dr. Hackam holding a baby in the hospital
  • Advocacy, Education, Recently Diagnosed

Fighting the Phantom Menace of NEC

“They don’t just suffer, they too often suffer alone.” Written by David J. Hackam, MD, ...
Staff grouped together holding NEC Society sign
  • Education, Symposium

2023 NEC Symposium

The NEC Symposium brought together 200 participants from 9 countries and 35 US states to ...
Jenn and Leslie with the book and a picture of Micah
  • Advocacy, Bereaved, Family Story

Forever Our Little One

Forever Our Little One is a storybook for families to read together after the devastating ...
Dr. Allison Rose
  • Project, Research

Remembering Dr. Allison Rose

The NEC Society is mourning the tragic loss of Dr. Allison Rose, who cared for ...
tree of courage painting
  • Advocacy, Bereaved, Family Story

The Story Behind the Tree of Courage Painting

My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after ...
NEC Awareness Month cover
  • Education

NEC Awareness Month

We chose May to be NEC Awareness Month because we will only build a world ...
Neonatal Probiotics Toolkit cover
  • Toolkit

Neonatal Probiotics Toolkit

The Toolkit is intended as a resource for clinicians in neonatal intensive care units seeking ...
Mother nursing newborn in the hospital
  • Education

How to Optimize the Use of Mother’s Own Milk in the NICU

In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk ...
Micah Life Celebration
  • Bereaved, Education

10 Things for Bereaved Parents to Know

Created by bereaved parents for bereaved parents. What we wish someone had told us when ...
Jenn and Micah
  • Education

10 Things All Parents of NICU Babies Need To Know

Created by parents of NICU babies impacted by NEC: what we wish we had known ...
baby in the NICU
  • Publication

NEC Society Statement on Lawsuits

The NEC Society is not involved in the litigation around formula and NEC because we ...
baby in the NICU
  • Education

I Gave My Baby Breast Milk. Why Did She Develop NEC?

This story challenges the assumption that breast milk alone prevents NEC. It highlights the complexities ...

Let’s Turn Pain Into Power

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