Jennifer Canvasser founded the Necrotizing Enterocolitis (NEC) Society after the tragic loss of her son, Micah, to complications of the disease. Through Jennifer’s leadership, the NEC Society has become the world’s leading NEC-focused nonprofit organization. Jennifer completed her undergraduate studies at UCLA, earned her Master’s in Social Work from the University of Southern California, and is currently a doctoral student in sociology at UC Davis. Jennifer serves as an expert panelist for the California Perinatal Quality Care Collaborative and served as an advisor for the Patient-Centered Outcomes Research Institute (PCORI) for three years. She has served as the project lead on three PCORI Engagement Awards as well as the Chan Zuckerberg Initiative’s Rare As One Network and Patient-Partnered Research Collaboration. Jennifer has completed 14 marathons, donated over 5,000 ounces of breast milk to HMBANA milk banks, and authored the storybook for bereaved families, Forever Our Little One.
