Family Resource Packets

Families affected by necrotizing enterocolits (NEC) often experience feelings of isolation, along with a lack of resources and information about the disease. Many of us at the NEC Society have been impacted by NEC, and we have created Family Resource Packets to provide the information we wish we would have had at the time. These packets contain up-to-date information about NEC and resources to empower, educate, and support families.

At limited neonatal intensive care units (NICUs) in the United States, a family whose baby was recently diagnosed with NEC or passes away from NEC can request one of our Family Resource Packets. The packet will be sent to their home, free of charge. Materials are available in both English and Spanish. The packets are only available through their hospital and not available for direct purchase. This program is made possible through the generous support of the NEC Society’s community. You can donate here. Thank you!

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