NEC SocietyCategory: NEC family stories
9 Things You Need to Know About Necrotizing Enterocolitis
Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…
Read MoreWorking Through Infertility, NEC, and Child Loss as an L&D Nurse
Written by Julie Cavellini, Labor & Delivery nurse and mother of Brooks and Carys Cossey After struggling with infertility for years, I was ecstatic to finally be pregnant with my son, Brooks. After three rounds of IVF, I was willing to do…
Read MoreMebane Family Honors Daughter Makenna with Generous Donation to NEC Society
Amena and Brandon Mebane welcomed their daughter Makenna to the world on November 12, 2018. Makenna was born at 35 weeks gestation with a genetic condition and heart defect. When Makenna was just eight days old, she developed necrotizing enterocolitis…
Read MoreFrom Three to One: Giving Birth to Triplets and Losing Two to NEC
Written by, Fannie, the mother of Keaton, Dorian and Aiden. I always wanted twins. I was 38 years old, and had just married the love of my life. I left my home and my whole life in France – my…
Read MoreThe Story Behind the Tree of Courage Painting
By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…
Read MoreBecoming an Advocate for My Son
Mom Heather works tirelessly to get her son the care he needs.
Read MoreHonoring My Son by Working to Reduce the Burden of NEC
Written by Guy’s mother, Joanne Ferguson, contributor to the Special Interest Group (SIGNEC) in the United Kingdom This picture of my son, Guy, is used to raise awareness of what is possibly the most complex condition that affects premature babies….
Read MoreRaising Awareness in Honor of Our Son
Written by Morrison and Dwight’s mother, Heather Driscoll After struggling with infertility for two years and spending thousands of dollars, we were finally pregnant. With twins. After all that pain and suffering, I smiled at the thought of being repaid with…
Read MoreBaby Zachary, a 36-Weeker who Developed NEC
Written by Sarah Landry, Zachary’s mother After a few miscarriages and the birth of our oldest son, Jackson, we were thrilled to find out we were pregnant with our second baby boy. My previous pregnancies were not easy and I…
Read MoreFrom Surviving NEC to Studying at NYU
Written by Linseigh Green, NEC Survivor Why couldn’t I have been born with a more romantic disease? Not that diseases are romantic, but of all the medical conditions, particularly those with long term effects, why was I stuck with the…
Read More