NEC SocietyCategory: NEC family stories
Forever Our Little One – a storybook for bereaved families
Click here to watch the KCRA News Interview featuring Forever Our Little One. Click play & listen to CapRadio NPR interview with Jennifer Canvasser. Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One,…
Read MoreGrandparents holding Grandbabies in their hearts
Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…
Read MoreForever Our Little One – a storybook for bereaved families
Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…
Read MoreResearch That Matters to Patients
By Linseigh Green, NEC Society Outreach Manager After graduating from NYU, the NEC Society invited me to share my story of growing up as a NEC survivor. At the 2019 NEC Symposium, I told the ballroom full of clinicians about…
Read MoreWhen the NICU nurse’s baby develops NEC
Written by Ryland’s mother, Margaret Fontanilla When I started working in the NICU as a new graduate nurse, I felt like a baby myself at 21 years old. More than a decade later, I gave birth to Ryland at 25…
Read MoreHonouring Baby Ezra
Written by Ezra’s parents, Harpreet & Tariq On July 13, 2021, I discovered the most amazing news of my life: I was pregnant with baby Ezra! This was my first pregnancy, and it caught us by surprise! Nevertheless, I was…
Read MoreSharing Nora’s Story to Raise Awareness About NEC
Written by Nora’s parents, Johnny and Cassey We sat down to start writing Nora’s story on the nine-month anniversary of her passing. It felt fitting to spend our 4th of July sharing our girls’ story in her honor. Nora wasn’t…
Read MoreFrom surviving NEC to propelling the NEC Society
Written by Linseigh Green, Outreach Manager for the NEC Society On August 13, 1997, my parents’ newborn wasn’t placed in their arms with a congratulatory flourish. Instead, they received news that I couldn’t hold enough glucose. Then, they were told…
Read MoreAhmaari’s Story of Surviving NEC
Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…
Read MoreFinding Purpose: the Zuri Nzilani Foundation
Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…
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