NEC SocietyCategory: NEC family stories
Forever Our Little One – a storybook for bereaved families
Click here to watch the KCRA News Interview featuring Forever Our Little One. Click play & listen to CapRadio NPR interview with Jennifer Canvasser. Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One,…
Read MoreMatilda’s Story
Written by Matilda’s mom, Ashleigh Grant Matilda was born at 10:26am, Tuesday 9th of January, 2018. At just 33+1 weeks, Matilda was born alongside her identical twin sister, Charlotte. The Grant twins spent two nights in the NICU before being…
Read MoreHonoring Teddy
Written by Teddy’s mom, Haley Beaupre On October 16th, 2022 we were 27 weeks and 3 days into our first pregnancy— a little boy we knew we would call Teddy. Our pregnancy was normal until that morning when I was…
Read MoreRemembering Reed
Written by Reed’s mother, Diana Robinson I had always wanted four children, and after a bit of persuasion, my husband agreed we could try for another baby. We had never been able to get pregnant “the old-fashioned way” and were…
Read MoreGrandparents holding Grandbabies in their hearts
Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…
Read MoreForever Our Little One – a storybook for bereaved families
Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…
Read MoreResearch That Matters to Patients
By Linseigh Green, NEC Society Outreach Manager After graduating from NYU, the NEC Society invited me to share my story of growing up as a NEC survivor. At the 2019 NEC Symposium, I told the ballroom full of clinicians about…
Read MoreWhen the NICU nurse’s baby develops NEC
Written by Ryland’s mother, Margaret Fontanilla When I started working in the NICU as a new graduate nurse, I felt like a baby myself at 21 years old. More than a decade later, I gave birth to Ryland at 25…
Read MoreHonouring Baby Ezra
Written by Ezra’s parents, Harpreet & Tariq On July 13, 2021, I discovered the most amazing news of my life: I was pregnant with baby Ezra! This was my first pregnancy, and it caught us by surprise! Nevertheless, I was…
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