Category: NEC family stories


Honouring Baby Ezra

Written by Ezra’s parents, Harpreet & Tariq On July 13, 2021, I discovered the most amazing news of my life: I was pregnant with baby Ezra! This was my first pregnancy, and it caught us by surprise! Nevertheless, I was…

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Sharing Nora’s Story to Raise Awareness About NEC

Written by Nora’s parents, Johnny and Cassey We sat down to start writing Nora’s story on the nine-month anniversary of her passing. It felt fitting to spend our 4th of July sharing our girls’ story in her honor.  Nora wasn’t…

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From surviving NEC to propelling the NEC Society

Written by Linseigh Green, Outreach Manager for the NEC Society On August 13, 1997, my parents’ newborn wasn’t placed in their arms with a congratulatory flourish. Instead, they received news that I couldn’t hold enough glucose. Then, they were told…

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Ahmaari’s Story of Surviving NEC

Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…

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Finding Purpose: the Zuri Nzilani Foundation

Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…

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From a NICU Mother to a NICU Nurse

Written by Marlayna McBride, RN, mother of Baby Madilyn Our daughter Madilyn was born via emergency cesarean thirteen weeks prematurely. She was delivered at a small community hospital, and was immediately transported to a level III NICU. My husband and…

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How the Pandemic Aggravates NICU Life

Written by Awanti Sambarey, PhD, the mother of Baby Indira. “Though she be but little, she is fierce” – William Shakespeare Nothing prepares you to have a preterm baby. My pregnancy was wonderful, and I did everything “right” – from…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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We Lost Our Daughter to NEC During the COVID-19 Crisis

Written by Emilia’s mother, Felicia Sears.  Our daughter, Emilia Quinn Sears, was born prematurely on March 15, 2020. As this was the beginning of America’s response to the coronavirus pandemic, our family’s experience was unlike anything we could have imagined….

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A Story of Hope

Written by Dr. Ana Ruzic Do, a pediatric surgeon at the University of Kentucky For anyone who cared for Connor and his family during his 6-month NICU stay, he is the very definition of hope. Prior to meeting Connor and…

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