Category: NEC family stories


Emergency Surgery, Complications & Hope- Claire’s Story

One family’s NEC experience

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Lakevia’s Story- An NEC Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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Luke’s Story

October 15 is Pregnancy & Infant Loss Awareness Day. The NEC Society remembers. Baby Luke was a deeply loved son and brother…this is his story.

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Hope’s Story

The NEC Society is honored to share stories of babies impacted by NEC- this is Hope’s story. By Hope’s Mom: After over 8 years of trying and many fertility treatments our dreams finally came true and I got pregnant.  The…

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Baby Alexander Beat the Odds and Survived NEC

Written by Baby Alexander’s Mother, Alicia.  Baby Alexander was born at 22 weeks gestation on November 17, 2014, weighing just 1 lb. 6 oz. He was given little to no chance of survival.  As his mother, I was overwhelmed and…

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Fauna’s Story: 23 week triplets and Necrotizing Enterocolitis

By Fauna Osborne, NEC Society Leadership Committee member On April 3, 2012 our lives changed forever. I was 23 weeks 2 days pregnant and delivered triplets. Viability for survival is generally understood to start at 24 weeks. This is where…

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Mom Raises Awareness in Honor of Baby Boy

The NEC Society frequently shares stories of babies impacted by NEC- this is Kyran’s story. By Candace  Kyran was our rainbow baby. About six months before I conceived him I had had a miscarriage, with this and being overweight, I…

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Clifford’s Story

The NEC Society frequently shares stories of babies impacted by NEC; Clifford’s story is one. We went into our 19 week ultrasound hoping to learn if our first child would be a boy or a girl, and we came out…

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Meet Brentlee: a full-term baby impacted by NEC

Written by Amber, Brentlee’s mom. It was an uneventful pregnancy. I had a little more stress than usual, but nothing I couldn’t handle. The delivery was uneventful as well. A scheduled C-section at 39 weeks. She came out crying and…

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After losing son to NEC, a mother pushes for milk bank and starts NEC Society

We are grateful to the Detroit Free Press for helping us raise awareness about the devastating impacts of NEC. To increase our impact, please comment on the story, and then recommend, share, and like it. A Mom’s Journey through Grief…

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