Category: NEC family stories


Learning to Live After Loss

Melissa Dlugolecki and Jennifer Canvasser share a love for running, healthy lifestyles, and green smoothies. But, unfortunately, that’s not what brought them together. Melissa and Jennifer each lost a child to necrotizing enterocolitis, and their children, Leyden and Micah, brought…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…

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Working Through Infertility, NEC, and Child Loss as an L&D Nurse

Written by Julie Cavellini, Labor & Delivery nurse and mother of Brooks and Carys Cossey After struggling with infertility for years, I was ecstatic to finally be pregnant with my son, Brooks. After three rounds of IVF, I was willing to do…

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Mebane Family Honors Daughter Makenna with Generous Donation to NEC Society

Amena and Brandon Mebane welcomed their daughter Makenna to the world on November 12, 2018. Makenna was born at 35 weeks gestation with a genetic condition and heart defect. When Makenna was just eight days old, she developed necrotizing enterocolitis…

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From Three to One: Giving Birth to Triplets and Losing Two to NEC

Written by, Fannie, the mother of Keaton, Dorian and Aiden.  I always wanted twins. I was 38 years old, and had just married the love of my life. I left my home and my whole life in France – my…

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The Story Behind the Tree of Courage Painting

By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC  My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…

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Becoming an Advocate for My Son

Mom Heather works tirelessly to get her son the care he needs.

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Honoring My Son by Working to Reduce the Burden of NEC

Written by Guy’s mother, Joanne Ferguson, contributor to the Special Interest Group (SIGNEC) in the United Kingdom This picture of my son, Guy, is used to raise awareness of what is possibly the most complex condition that affects premature babies….

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Raising Awareness in Honor of Our Son

Written by Morrison and Dwight’s mother, Heather Driscoll After struggling with infertility for two years and spending thousands of dollars, we were finally pregnant. With twins. After all that pain and suffering, I smiled at the thought of being repaid with…

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Baby Zachary, a 36-Weeker who Developed NEC

Written by Sarah Landry, Zachary’s mother After a few miscarriages and the birth of our oldest son, Jackson, we were thrilled to find out we were pregnant with our second baby boy. My previous pregnancies were not easy and I…

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