What We Do

Micah in the NICUNEC (necrotizing enterocolitis) is a leading causes of infant death, impacting thousands of babies every year in the United States. It is a devastating intestinal disease that primarily affects preemies and medically fragile infants.

The NEC Society is a non-profit, tax-exempt, 501c3 organization, made up of a diverse group of healthcare practitioners, researchers, and families from across the country who seek to improve outcomes for infants at risk of necrotizing enterocolitis. For more about us, check out the NEC Society’s vision.

Our Mission: Through education, outreach, research, and advocacy, we are committed to understanding necrotizing enterocolitis and reducing its incidence.

NEC 1-sheet

Click image to download our one-page info sheet

NEC is a leading cause of infant death and claims the lives of thousands of babies every year in the United States. In addition, thousands more surviving infants impacted by NEC experience extensive surgeries, lengthy hospitalizations and life-long complications. Despite research and medical advancements, the NEC mortality rate has not improved in over thirty years.

The NEC Society believes the status quo is unacceptable. Research has shown that there are ways to help prevent this devastating disease, but lack of prioritization, funding and awareness have hindered meaningful progress. The NEC Society seeks to close the gap between best practices and what is actually happening in neonatal intensive care units (NICUs) across the country. The NEC Society wants to see health institutions, policymakers and the public prioritize this common, costly, deadly neonatal disease. This is what we do:

Raise awareness
  • On the factors that increase the risks of NEC:
    • Formula
    • Antibiotics and other pharmaceuticals
    • Quick advancement of feeds
  • On the factors the reduces the risks of NEC:
    • Human milk
    • Probiotics
  • For promising policies and strategies to improve outcomes and patient-family centered care for infants at risk of necrotizing enterocolitis.
  • For hospitals to implement best practices and high care standards for medically fragile infants at risk of necrotizing enterocolitis and their families.
Promote & Conduct Research
  • Partner with scientists whose research focuses on necrotizing enterocolitis.
  • Develop research priorities needed to prevent, reduce, and treat necrotizing enterocolitis.

One Comment on “What We Do

  1. We lost our son at 26 days old to NEC we were never warned of it being even something to worry about, there was no warning and no education until it happened we want to become involved and helping to educate nicu parents and making them more aware so that they can be more involved in the decision making of raising feedings progression for their babies.

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