What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication.

The NEC Society is a non-profit, 501c3 organization, made up of a diverse group of healthcare providers, researchers, and patient-families who are committed to building a world without NEC.

The NEC Society is constantly striving to broaden and diversify our reach to underrepresented communities by identifying patient-families who have been personally impacted by NEC and empowering them to share their story.

The NEC Society intentionally elevates the voices of women, individuals from diverse backgrounds, the LGBTQ+ community, people with disabilities, and marginalized groups, as they bring critical insight and advance the NEC Society’s vision of a world without NEC.

Vision: a world without NEC

Research has shown that there are ways to help prevent this devastating disease. Here are ways we strive to improve outcomes, raise awareness, and drive patient-centered research:

Raise awareness
  • Risk factors
    • Formula
    • Antibiotics
  • Protective factors
    • Mothers own milk
    • Probiotics
Advocate
  • Patient-family centered care
  • Highest standards of care
Promote & Conduct Research
  • NEC research that is relevant and meaningful to patient-families
  • Work to establish best practices to help prevent NEC

The NEC Society’s Conflicts Policy is available for review by clicking here.

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