What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication.

The NEC Society is a non-profit, 501c3 organization, made up of a diverse group of healthcare providers, researchers, and patient-families who are committed to building a world without NEC.

The NEC Society is constantly striving to broaden and diversify our reach to underrepresented communities by identifying patient-families who have been personally impacted by NEC and empowering them to share their story.

The NEC Society intentionally elevates the voices of women, people of color, and individuals with rare or unique experiences to share, as they bring critical insight and exponentially advance the NEC Society’s vision of a world without NEC.

Vision: a world without NEC

Research has shown that there are ways to help prevent this devastating disease. Here are ways we strive to improve outcomes, raise awareness, and drive patient-centered research:

Raise awareness
  • Risk factors
    • Formula
    • Antibiotics
  • Protective factors
    • Mothers own milk
    • Probiotics
  • Patient-family centered care
  • Highest standards of care
Promote & Conduct Research
  • NEC research that is relevant and meaningful to patient-families
  • Work to establish best practices to help prevent NEC

The NEC Society’s Conflicts Policy is available for review by clicking here.

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