NEC SocietyArchives
Running for a World without NEC
The NEC Society’s running team completed the 2021 California International Marathon in honor of families affected by necrotizing enterocolitis. We completed CIM for our sons, daughters, friends, and loved ones – they are stronger than any marathoner and their stories…
Read MoreWebinar: NEC Surgery Trial (NEST) Results
The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar featured Dr. Martin Blakely, who led the NEST work, along with a panel of experts. The recording…
Read MoreSupport the NEC Society
Please help us raise awareness and funds to build a world without necrotizing enterocolitis! Here’s how you can get involved: Make a tax-deductible donation to the NEC Society Read and share our What is NEC? info sheet Read and share…
Read MoreWe Lost Our Daughter to NEC During the COVID-19 Crisis
Written by Emilia’s mother, Felicia Sears. Our daughter, Emilia Quinn Sears, was born prematurely on March 15, 2020. As this was the beginning of America’s response to the coronavirus pandemic, our family’s experience was unlike anything we could have imagined….
Read MoreDonor Milk Is Still Safe in the SARS-CoV-2 Pandemic
Written by Erin Hamilton Spence, MD, IBCLC Medical Director Mother’s Milk Bank of North Texas Neonatologist, Fort Worth, TX In March 2020, I was working in the NICU as my family was home on spring break. As my kids were…
Read MoreNEC Society Expands Board of Directors
The Necrotizing Enterocolitis (NEC) Society is proud to welcome Jolene Jacobs, MBA and Susan Perez, PhD, MPH to the Board of Directors. The Board of Directors oversees the NEC Society’s operations, projects, and research, while working to ensure they align…
Read MoreNICHD Director to Keynote NEC Symposium
The NEC Society is honored to announce that Dr. Diana Bianchi will serve as the opening keynote speaker for the Necrotizing Enterocolitis (NEC) Symposium. Dr. Bianchi is the Director of the Eunice Kennedy Shriver National Institute of Child Health and…
Read MoreNEC Society Receives $450,000 Award from Chan Zuckerberg Initiative
The Necrotizing Enterocolitis (NEC) Society is one of 30 patient-led organizations to become part of the Chan Zuckerberg Initiative’s Rare As One Network. The Rare As One Network aims to support patient communities in accelerating research and driving progress in…
Read MoreHow to Optimize the Use of Mother’s Own Milk in the NICU
Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…
Read More2019 Year in Review
Thanks to our generous community of supporters, in 2019 the NEC Society brought us closer to a world without necrotizing enterocolitis. Over the last year, we’ve engaged thousands of diverse stakeholders from around the globe. Together, we’ve launched research projects,…
Read More