NEC SocietyArchives
Forever Our Little One – a storybook for bereaved families
Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…
Read MoreGrandparents holding Grandbabies in their hearts
Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…
Read MoreNEC Society Welcomes New Board Members
The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Martin Blakely, MD, MS and Simone Rosito, MA to the organization’s Board of Directors. Martin Blakely is a pediatric surgeon and scientist who has dedicated his career to understanding and improving outcomes…
Read MoreResearch That Matters to Patients
By Linseigh Green, NEC Society Outreach Manager After graduating from NYU, the NEC Society invited me to share my story of growing up as a NEC survivor. At the 2019 NEC Symposium, I told the ballroom full of clinicians about…
Read MoreNEC Society Welcomes Development Director!
The NEC Society is thrilled to welcome Julia Goldstein as our Development Director. Julia has over 20 years of professional fundraising experience in the nonprofit sector, as well as a deeply personal appreciation for the power of giving. Julia was…
Read MoreRunning for a World without NEC
The NEC Society’s running team completed the 2021 California International Marathon in honor of families affected by necrotizing enterocolitis. We completed CIM for our sons, daughters, friends, and loved ones – they are stronger than any marathoner and their stories…
Read MoreWebinar: NEC Surgery Trial (NEST) Results
The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar featured Dr. Martin Blakely, who led the NEST work, along with a panel of experts. The recording…
Read MoreSupport the NEC Society
Please help us raise awareness and funds to build a world without necrotizing enterocolitis! Here’s how you can get involved: Make a tax-deductible donation to the NEC Society Read and share our What is NEC? info sheet Read and share…
Read MoreWe Lost Our Daughter to NEC During the COVID-19 Crisis
Written by Emilia’s mother, Felicia Sears. Our daughter, Emilia Quinn Sears, was born prematurely on March 15, 2020. As this was the beginning of America’s response to the coronavirus pandemic, our family’s experience was unlike anything we could have imagined….
Read MoreDonor Milk Is Still Safe in the SARS-CoV-2 Pandemic
Written by Erin Hamilton Spence, MD, IBCLC Medical Director Mother’s Milk Bank of North Texas Neonatologist, Fort Worth, TX In March 2020, I was working in the NICU as my family was home on spring break. As my kids were…
Read More