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What We Do

NEC (necrotizing enterocolitis) is a leading causes of infant death, impacting thousands of babies every year in the United States. It is a devastating intestinal disease that primarily affects preemies. The NEC Society is a non-profit, tax-exempt, 501c3 organization, made up…

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Who We Are

The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own…

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Volunteer your time, donate funds, get active in your community…there are so many ways you can support the NEC Society and protect our most fragile infants from this devastating disease. We’re changing the status quo by working together with people…



The NEC Society Stands Up For The Most Vulnerable

The NEC Society is a 501c3, nonpartisan organization that warmly welcomes all viewpoints and perspectives. This is an opportune time to remind our community the values upon which the NEC Society was founded. Yes, the NEC Society’s core mission is…


NEC Society Launches Groundbreaking Research Collaborative

The NEC Society has launched the first Research Collaborative focused on advancing the study of neonatal NEC!

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KicKee Pants Sponsors NEC Society

The NEC Society is incredibly honored to welcome KicKee Pants as an  NEC Society sponsor. KicKee Pants is committed to creating the most buttery soft, whimsical clothing for babies, children and women. The company is well known for its philanthropic, generous nature,…

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Educational Resources

The following resources are available free of charge for any NICU, nonprofit or individual. Please print and display them to help us educate families about NEC!

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The Best Children’s Hospitals and NICUs use Donor Milk

The NEC Society is committed to reducing the incidence of necrotizing enterocolitis (NEC). We strive to raise awareness, empower families, and provide information on factors that increase or decrease the risks of NEC. It is imperative that families have open,…

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