What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…

Contribute

We need YOU to help us build a world without necrotizing enterocolitis. Together we can advance NEC research, education, and advocacy. Together we can prevent NEC and improve outcomes for our most vulnerable babies.

News

NEC Society Welcomes Development Director!

The NEC Society is thrilled to welcome Julia Goldstein as our Development Director. Julia has over 20 years of professional fundraising experience in the nonprofit sector, as well as a deeply personal appreciation for the power of giving. Julia was…

When the NICU nurse’s baby develops NEC

Written by Ryland’s mother, Margaret Fontanilla When I started working in the NICU as a new graduate nurse, I felt like a baby myself at 21 years old. More than a decade later, I gave birth to Ryland at 25…

NEC Society Welcomes Dr. Samir Gadepalli to Board of Directors

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Samir Gadepalli to the organization’s Board of Directors. Dr. Gadepalli is a pediatric surgeon at the University of Michigan in Ann Arbor who served on the Scientific Advisory…

9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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