NEC Society
By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…
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NEC Society Research Collaborative Launches NEC Biorepository
First ever NEC biobank established!
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NOVA PBS: NEC and Probiotics
NOVA Next explores necrotizing enterocolitis, probiotics and the complex devastation of this disease.
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2017 NEC Symposium Highlight Reel
This short video shares the excitement and spirit of the 2017 NEC Symposium
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2017 NEC Symposium Summary
The Conference Summary is now available! Download to read highlights from each session.
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NEC Society Launches Groundbreaking Research Collaborative
The NEC Society has launched the first Research Collaborative focused on advancing the study of neonatal NEC!
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10 Incredible Gifts for NICU Families
Ideas to support families while they are in the NICU, from parents who have been there.
What We Do
NEC (necrotizing enterocolitis) is a leading causes of infant death, impacting thousands of babies every year in the United States. It is a devastating intestinal disease that primarily affects preemies and medically fragile infants. The NEC Society is a non-profit, tax-exempt,…
Who We Are
The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own…
Contribute
Volunteer your time, donate funds, get active in your community…there are so many ways you can support the NEC Society and protect our most fragile infants from this devastating disease. We’re changing the status quo by working together with people…
News
President of VON to Keynote the 2019 NEC Symposium
The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan C.S. Mott Children’s Hospital, is honored to announce that Dr. Roger Soll, President of the Vermont Oxford Network (VON), will keynote the 2019 NEC…
Fighting the Phantom Menace of NEC
Written by David J. Hackam, MD, PhD, Chief of Pediatric Surgery and Surgeon-in- Chief Johns Hopkins Children’s Center “They don’t just suffer, they suffer alone.” Necrotizing enterocolitis is not just a major disease that affects premature infants. Rather, it is the very…
Educational Resources
The following resources are available free of charge for any NICU or nonprofit. Please print and display them to help us raise awareness! Click here for 8.5 x 11 version of the poster. Click here for 8.5 x 11 version…
The Best Children’s Hospitals and NICUs use Donor Milk
The NEC Society is committed to reducing the incidence of necrotizing enterocolitis (NEC). We strive to raise awareness, empower families, and provide information on factors that increase or decrease the risks of NEC. It is imperative that families have open,…
