NEC Society
Rare Disease Day is February 28th. Ask any NICU parent or healthcare provider and they are likely to tell you that NEC is not rare in the NICU. NEC affects thousands of premature and medically fragile infants every year. Indeed,…
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NEC Society Shop is now open!
All proceeds go directly toward our mission to build a world without NEC!
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VIDEO: NEC Prevention Through Collaboration
Check out our new video designed to encourage providers and patient-families to partner to improve care for babies!
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What We Do
NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…
Who We Are
The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…
Contribute
We need YOU to help us build a world without necrotizing enterocolitis. Together we can drive research, raise awareness, and improve outcomes for our most vulnerable babies. Here are 5 things you can do TODAY to help us build a…
News
Congenital Heart Defect Awareness Week
Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…
NEC Society collaborates with ISAPP to help inform parents about probiotics
More than 50 clinical trials on probiotics and necrotizing enterocolitis (NEC) have been published, prompting some medical organizations to provide guidance and recommendations on the use of probiotics with infants who are at increased risk of NEC. As the NEC…
Living With NEC: A Survivor’s Experience
Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.
How to Optimize the Use of Mother’s Own Milk in the NICU
Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…
9 Things You Need to Know About Necrotizing Enterocolitis
Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…