What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…

Contribute

We need YOU to help us build a world without necrotizing enterocolitis. Together we can advance NEC research, education, and advocacy. Together we can prevent NEC and improve outcomes for our most vulnerable babies.

News

Announcing the 2023 NEC Symposium!

We’re thrilled to announce the 2023 NEC Symposium will take place in San Diego, CA at the Loews Coronado Bay Resort! Registration will open in the coming months. If you complete this form, we’ll send you a calendar invite for August…

Surgical NEC webinar – join us on Oct 14

Many infants who develop necrotizing enterocolitis need surgery. Join us on October 14 @ 9amPT/12pmET to hear from pediatric surgeons who are helping the NEC Society build a world without NEC. Our pediatric surgeons will explore surgical options, the decision-making…

Sharing Nora’s Story to Raise Awareness About NEC

Written by Nora’s parents, Johnny and Cassey We sat down to start writing Nora’s story on the nine-month anniversary of her passing. It felt fitting to spend our 4th of July sharing our girls’ story in her honor.  Nora wasn’t…

9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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