What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…

Contribute

We need YOU to help us build a world without necrotizing enterocolitis. Together we can advance NEC research, education, and advocacy. Together we can prevent NEC and improve outcomes for our most vulnerable babies.

News

Forever Our Little One – a storybook for bereaved families

Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…

Grandparents holding Grandbabies in their hearts

Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…

Announcing the 2023 NEC Symposium!

We’re thrilled to announce the 2023 NEC Symposium will take place in San Diego, CA at the Loews Coronado Bay Resort! Registration will open in the coming months. If you complete this form, we’ll send you a calendar invite for August…

9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and executive director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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