What We Do

NEC (necrotizing enterocolitis) is a leading causes of infant death, impacting thousands of babies every year in the United States. It is a devastating intestinal disease that primarily affects preemies and medically fragile infants. The NEC Society is a non-profit, 501c3…

Who We Are

The NEC Society is a clinician-family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC. We are…

Contribute

Volunteer your time, donate funds, get active in your community…there are so many ways you can support the NEC Society and protect our most fragile infants from this devastating disease. We’re changing the status quo by working together with people…

News

NEC Society Founder, Director Appointed to PCORI’s Patient Engagement Advisory Panel

The Patient-Centered Outcomes Research Institute (PCORI) has appointed the founder and director of the NEC Society, Jennifer Canvasser, to serve on their Patient Engagement Advisory Panel. Jennifer is a macropractice social worker, PCORI Ambassador, and a bereaved mother. She completed…

PCORI’s Associate Director of Clinical Effectiveness and Decision Science to Present at NEC Symposium

The NEC Society is honored to welcome Dr. Anne Trontell to the NEC Symposium faculty team. Dr. Trontell serves as the Associate Director of Clinical Effectiveness and Decision Science Program at the Patient-Centered Outcomes Research Institute (PCORI), where she helps to oversee…

How to Explain When NEC Rates Persist – Even When a NICU Does Everything “Right”

Written by the NEC Society’s scientific advisor, Ravi Patel, MD, MSc, Associate Professor of Pediatrics, Emory University School of Medicine Five years ago, we embarked on a quality improvement effort to decrease the rates of NEC at our center. I…

VIDEO: NEC Prevention Through Collaboration

Check out our new video designed to encourage providers and patient-families to partner to improve care for babies!

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Educational Resources

The following resources are available free of charge for any NICU or nonprofit. Please print and display them to help us raise awareness!  Click here for 8.5 x 11 version of the poster. Click here for 8.5 x 11 version…

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The Best Children’s Hospitals and NICUs use Donor Milk

The NEC Society is committed to reducing the incidence of necrotizing enterocolitis (NEC). We strive to raise awareness, empower families, and provide information on factors that increase or decrease the risks of NEC. It is imperative that families have open,…

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