What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…


We need YOU to help us build a world without necrotizing enterocolitis. Together we can advance NEC research, education, and advocacy. Together we can prevent NEC and improve outcomes for our most vulnerable babies.


NEC Society Welcomes Research Coordinator!

We are thrilled to welcome Erin Pryor, MPH, RDN, LD, who will serve as the NEC Society’s Research Coordinator. Erin is a Registered Dietitian with a Master of Public Health degree from the University of Texas, Houston Health Sciences Center….

Running for a World without NEC

The NEC Society’s running team will complete the California International Marathon in honor of families affected by necrotizing enterocolitis and rare pediatric diseases. We are running for our sons, daughters, friends, and loved ones who have faced a rare disease…

Webinar: NEC Surgery Trial (NEST) Results

The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar featured Dr. Martin Blakely, who led the NEST work, along with a panel of experts. The recording…

9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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