What We Do

NEC (necrotizing enterocolitis) is a leading causes of infant death, impacting thousands of babies every year in the United States. It is a devastating intestinal disease that primarily affects preemies and medically fragile infants. The NEC Society is a non-profit, tax-exempt,…

Who We Are

The NEC Society is a clinician-family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC. We are…

Contribute

Volunteer your time, donate funds, get active in your community…there are so many ways you can support the NEC Society and protect our most fragile infants from this devastating disease. We’re changing the status quo by working together with people…

News

NEC Symposium to Address Disparities in the Care of Fragile Infants

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan, with support from PCORI, is proud to announce the NEC Symposium in Ann Arbor will open with a session that addresses disparities in the…

Defining NEC: beginning to shed light in a dark room

Written by Dr. Steven Mcelroy, a neonatologist at the University of Iowa  “The beginning of wisdom is to call things by their right names” –Old Chinese Proverb Necrotizing enterocolitis (NEC) is one of the oldest diagnoses in the field of…

The Story Behind the Tree of Courage Painting

By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC  My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…

Educational Resources

The following resources are available free of charge for any NICU or nonprofit. Please print and display them to help us raise awareness!  Click here for 8.5 x 11 version of the poster. Click here for 8.5 x 11 version…

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The Best Children’s Hospitals and NICUs use Donor Milk

The NEC Society is committed to reducing the incidence of necrotizing enterocolitis (NEC). We strive to raise awareness, empower families, and provide information on factors that increase or decrease the risks of NEC. It is imperative that families have open,…

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