What We Do

NEC (necrotizing enterocolitis) is a leading causes of infant death, impacting thousands of babies every year in the United States. It is a devastating intestinal disease that primarily affects preemies and medically fragile infants. The NEC Society is a non-profit, 501c3…

Who We Are

The NEC Society is a clinician-family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC. We are…

Contribute

Volunteer your time, donate funds, get active in your community…there are so many ways you can support the NEC Society and protect our most fragile infants from this devastating disease. We’re changing the status quo by working together with people…

News

Marathon Runners Raise Funds for NEC Society

The NEC Society has built a team of 19 runners to run the California International Marathon (CIM) in honor of babies impacted by necrotizing enterocolitis (NEC)! The 26.2 mile race will raise awareness and funds for the NEC Society, a…

Light a Candle with Us on October 15th

“We want to prevent families from suffering the lifelong, devastating heartache and grief that we will always carry with us.” Thirty years have passed since October was designated National Pregnancy and Infant Loss Awareness Month in the United States. Twelve…

NEC Checklist by NEC-Zero Seeks to Prevent NEC

By Caroline Porter, RN, BSN; The University of Arizona College of Nursing When it comes to caring for fragile infants, many aspects need to be considered to help them thrive. Necrotizing enterocolitis (NEC) is a devastating disease that can quickly…

VIDEO: NEC Prevention Through Collaboration

Check out our new video designed to encourage providers and patient-families to partner to improve care for babies!

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Educational Resources

The following resources are available free of charge for any NICU or nonprofit. Please print and display them to help us raise awareness!  Click here for 8.5 x 11 version of the poster. Click here for 8.5 x 11 version…

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The Best Children’s Hospitals and NICUs use Donor Milk

The NEC Society is committed to reducing the incidence of necrotizing enterocolitis (NEC). We strive to raise awareness, empower families, and provide information on factors that increase or decrease the risks of NEC. It is imperative that families have open,…

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