What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…

Contribute

We need YOU to help us build a world without necrotizing enterocolitis. Together we can drive research, raise awareness, and improve outcomes for our most vulnerable babies. Here are 5 things you can do TODAY to help us build a…

News

NEC Society collaborates with ISAPP to help inform parents about probiotics

More than 50 clinical trials on probiotics and necrotizing enterocolitis (NEC) have been published, prompting some medical organizations to provide guidance and recommendations on the use of probiotics with infants who are at increased risk of NEC. As the NEC…

Can concentrated mother’s milk help to prevent NEC?

Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…

2020 Year in Review

Like each of us, the NEC Society began 2020 with specific plans, goals, and a vision for the possibilities of 2020. Of course, our best-laid plans were promptly upended when the pandemic swept across the country. Undoubtedly, this year has…

Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…

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