What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…

Contribute

We need YOU to help us build a world without necrotizing enterocolitis. Together we can advance NEC research, education, and advocacy. Together we can prevent NEC and improve outcomes for our most vulnerable babies.

News

NEC Society Statement on Supreme Court Decision in Dobbs v. Jackson Women’s Health Organization

The NEC Society is driven by a profound concern for the well-being of patients and families. As such, the NEC Society unequivocally condemns the U.S. Supreme Court’s decision in Dobbs v. Jackson Women’s Health Organization. Our organization is committed to…

2022 Champions for a world without NEC

The NEC Society is thrilled to announce our 2022 Champions for a world without NEC! The NEC Society is a patient-led nonprofit that brings together a diverse community of people who care about families affected by NEC. Together, we are…

NEC Society’s Inclusivity Policy

The Necrotizing Enterocolitis (NEC) Society is a 501(c)(3), nonpartisan organization that deliberately prioritizes diversity. We are committed to building an inclusive community that serves as a voice for all, including the most vulnerable among us. The NEC Society intentionally supports…

9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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