What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…

Contribute

We need YOU to help us build a world without necrotizing enterocolitis. Together we can drive research, raise awareness, and improve outcomes for our most vulnerable babies. Here are 5 things you can do TODAY to help us build a…

News

How the NEC Society is Striving to Advance Diversity, Equity, and Inclusion

Written by Jennifer Canvasser, founder and director of the NEC SocietyThis originally appeared on GlobalGenes.org My son Micah spent months in the NICU and PICU. During his hospitalization, I learned what it means to be vulnerable, isolated, and powerless. It…

Fall 2020 Webinar Series

We are delighted to announce our Fall 2020 Webinar Series! Please check out the details below for the dates, topics, and line up of speakers.  Register by clicking here  Cardiac NEC Wednesday, September 30, 3pm – 4:30pm ET, with presentations…

Finding Purpose: the Zuri Nzilani Foundation

Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…

Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…

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