Category: NEC Society Blog


Sharing Nora’s Story to Raise Awareness About NEC

Written by Nora’s parents, Johnny and Cassey We sat down to start writing Nora’s story on the nine-month anniversary of her passing. It felt fitting to spend our 4th of July sharing our girls’ story in her honor.  Nora wasn’t…

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Researchers Demonstrate Machine Learning Approach to NEC Prediction

A recent publication in BMC Bioinformatics describes a machine learning system that could potentially be used to predict NEC before the disease advances. The technology, developed by researchers at the University of Pittsburgh and Columbia University, uses a neural network…

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World Breastfeeding Week 2022

Woman and baby

Providing premature and medically fragile infants with human milk offers the most protection against necrotizing enterocolitis (NEC). That’s why the NEC Society joins the global community in recognizing and celebrating World Breastfeeding Week (WBW) each year. WBW takes place on…

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Modeling NEC

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NEC Society Statement on Supreme Court Decision in Dobbs v. Jackson Women’s Health Organization

The NEC Society is driven by a profound concern for the well-being of patients and families. As such, the NEC Society unequivocally condemns the U.S. Supreme Court’s decision in Dobbs v. Jackson Women’s Health Organization. Our organization is committed to…

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2022 Champions for a world without NEC

The NEC Society is thrilled to announce our 2022 Champions for a world without NEC! The NEC Society is a patient-led nonprofit that brings together a diverse community of people who care about families affected by NEC. Together, we are…

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NEC Society’s Inclusivity Policy

The Necrotizing Enterocolitis (NEC) Society is a 501(c)(3), nonpartisan organization that deliberately prioritizes diversity. We are committed to building an inclusive community that serves as a voice for all, including the most vulnerable among us. The NEC Society intentionally supports…

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May is NEC Awareness Month

World NEC Awareness Day is May 17.  Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…

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Earth Day is April 22!

Earth Day is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor for…

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NEC Society Welcomes Dr. Aloka Patel to Scientific Advisory Council

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Aloka Patel to the organization’s Scientific Advisory Council. Dr. Patel is a neonatologist at Rush University Children’s Hospital. Much of Dr. Patel’s work is dedicated to advancing research…

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