Category: Raising Awareness


NEC Symposium to Address Disparities in the Care of Fragile Infants

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan, with support from PCORI, is proud to announce the NEC Symposium in Ann Arbor will open with a session that addresses disparities in the…

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Defining NEC: beginning to shed light in a dark room

Written by Dr. Steven Mcelroy, a neonatologist at the University of Iowa  “The beginning of wisdom is to call things by their right names” –Old Chinese Proverb Necrotizing enterocolitis (NEC) is one of the oldest diagnoses in the field of…

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NEC Society Receives PCORI Engagement Award

The NEC Society has received an Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the 2019 NEC Symposium. The NEC Symposium is made possible through a partnership between the NEC Society and the Section of Pediatric Surgery…

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The Story Behind the Tree of Courage Painting

By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC  My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…

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Patient-Family Keynote Panel Announced for 2019 NEC Symposium

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan C.S. Mott Children’s Hospital, is thrilled to announce the Patient-Family Keynote Panel at the 2019 NEC Symposium. The goal of the Patient-Family Panel is…

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NEC Awareness Day: What You Can Do

Nonprofit organizations from around the world are uniting to declare May 17th NEC Awareness Day. This international day will elevate the conversation around this devastating disease. NEC (necrotizing enterocolitis) is a leading cause of death for premature and medically fragile…

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Becoming an Advocate for My Son

Mom Heather works tirelessly to get her son the care he needs.

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Honoring My Son by Working to Reduce the Burden of NEC

Written by Guy’s mother, Joanne Ferguson, contributor to the Special Interest Group (SIGNEC) in the United Kingdom This picture of my son, Guy, is used to raise awareness of what is possibly the most complex condition that affects premature babies….

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President of VON to Keynote the 2019 NEC Symposium

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan C.S. Mott Children’s Hospital, is honored to announce that Dr. Roger Soll, President of the Vermont Oxford Network (VON), will keynote the 2019 NEC…

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Fighting the Phantom Menace of NEC

Written by David J. Hackam, MD, PhD, Chief of Pediatric Surgery and Surgeon-in- Chief Johns Hopkins Children’s Center “They don’t just suffer, they suffer alone.” Necrotizing enterocolitis is not just a major disease that affects premature infants. Rather, it is the very…

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