Category: NEC Society Blog


From surviving NEC to propelling the NEC Society

Written by Linseigh Green, Outreach Manager for the NEC Society On August 13, 1997, my parents’ newborn wasn’t placed in their arms with a congratulatory flourish. Instead, they received news that I couldn’t hold enough glucose. Then, they were told…

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We exceeded our NEC Awareness Day fundraising goal!

We are grateful and thrilled to share that we exceeded our NEC Awareness Day fundraising goal! With our global partners, the NEC Society declared May 17 as World NEC Awareness Day in 2018. Each year since, NEC Day has allowed…

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NICU Parents Need Access to Information About Probiotics

The American Academy of Pediatrics recently released its statement on probiotic use in preterm infants at risk of necrotizing enterocolitis. The NEC Society appreciates the AAP’s thoughtful review and efforts. As a patient-led organization committed to building a world without…

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NEC 2021 Summer Webinars

The NEC Society is committed to providing learning and educational opportunities for our multidisciplinary community. In addition to the NEC Symposium, we host webinars on topics that matter most to our diverse stakeholders. We are delighted to announce our 2021…

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Ahmaari’s Story of Surviving NEC

Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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NEC Awareness Day (May 17)

Please help us raise awareness and funds to build a world without necrotizing enterocolitis! World NEC Awareness Day is May 17.  NEC is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up…

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Earth Day is April 22!

Earth Day 2021 is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor…

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NICUs Should Give Books to Their Babies

Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…

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Rare is everywhere, including in the NICU.

Rare Disease Day is February 28th. Ask any NICU parent or healthcare provider and they are likely to tell you that NEC is not rare in the NICU. NEC affects thousands of premature and medically fragile infants every year. Indeed,…

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