Category: NEC Society Blog


Forever Our Little One – a storybook for bereaved families

Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…

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Grandparents holding Grandbabies in their hearts

Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…

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Announcing the 2023 NEC Symposium!

We’re thrilled to announce the 2023 NEC Symposium will take place in San Diego, CA at the Loews Coronado Bay Resort! Registration will open in the coming months. If you complete this form, we’ll send you a calendar invite for August…

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Neonatal Probiotics Toolkit

The NEC Society’s Neonatal Probiotics Toolkit is now available! The Toolkit is intended as a resource for clinicians in neonatal intensive care units seeking to gain a better understanding of probiotics use in the NICU. It is not a recommendation…

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CA Declares May 17 NEC Awareness Day

Sacramento, California – The Necrotizing Enterocolitis (NEC) Society is grateful to announce that California has declared May 17th as NEC Awareness Day with ACR 69. This resolution reflects the tireless dedication and advocacy by the NEC Society, its founder, Jennifer…

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NEC Society Welcomes New Board Members

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Martin Blakely, MD, MS and Simone Rosito, MA to the organization’s Board of Directors. Martin Blakely is a pediatric surgeon and scientist who has dedicated his career to understanding and improving outcomes…

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May is NEC Awareness Month

World NEC Awareness Day is May 17.  Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…

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Too many babies are still dying from NEC, as improvements slow and disparities persist

A study published in JAMA Network Open has found that in the US between 1999 and 2020, Black infants disproportionately died from necrotizing enterocolitis compared to White infants, despite overall improvements in the rates of death from the disease. Necrotizing…

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CEO of the American Academy of Pediatrics to Keynote NEC Symposium

The NEC Society is honored to announce that Mark Del Monte, JD will provide the keynote presentation on advocacy at the NEC Symposium taking place in San Diego, CA, August 28 – 30, 2023. Mark is the CEO/Executive Vice President…

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2023 NEC Awareness shirts are now available!

Check out our shop to get ready for NEC Awareness Month (May)

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