NEC SocietyCategory: NEC Society Blog
May is NEC Awareness Month
World NEC Awareness Day is May 17. Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…
Read MoreAmena Mebane to Keynote NEC Symposium
The NEC Society is honored to announce that Amena Mebane, Esq. will provide the opening keynote at the NEC Symposium taking place in San Diego, CA, August 28 – 30, 2023. Amena joined the NEC Society’s Board of Directors shortly after…
Read MoreToo many babies are still dying from NEC, as improvements slow and disparities persist
A study published in JAMA Network Open has found that in the US between 1999 and 2020, Black infants disproportionately died from necrotizing enterocolitis compared to White infants, despite overall improvements in the rates of death from the disease. Necrotizing…
Read MoreCEO of the American Academy of Pediatrics to Keynote NEC Symposium
The NEC Society is honored to announce that Mark Del Monte, JD will provide the keynote presentation on advocacy at the NEC Symposium taking place in San Diego, CA, August 28 – 30, 2023. Mark is the CEO/Executive Vice President…
Read More2023 NEC Awareness shirts are now available!
Check out our shop to get ready for NEC Awareness Month (May)
Read MoreNEC Society Welcomes Dr. Susan Hintz to Scientific Advisory Council
The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Susan Hintz to the organization’s Scientific Advisory Council. Dr. Hintz is a neonatologist and perinatal epidemiologist at Stanford University. Dr. Hintz is dedicated to improving outcomes for high-risk infants…
Read MoreResearch That Matters to Patients
By Linseigh Green, NEC Society Outreach Manager After graduating from NYU, the NEC Society invited me to share my story of growing up as a NEC survivor. At the 2019 NEC Symposium, I told the ballroom full of clinicians about…
Read MoreVideo: Reflecting on the NEC Society’s growth
We’ve grown so much since our organization was launched in 2014. Watch our 1-minute video recap to see what we achieved in 2022. Thank you to everyone who supports our work & shares our dedication to building a world without…
Read MoreNEC Society Welcomes Development Director!
The NEC Society is thrilled to welcome Julia Goldstein as our Development Director. Julia has over 20 years of professional fundraising experience in the nonprofit sector, as well as a deeply personal appreciation for the power of giving. Julia was…
Read MoreWhen the NICU nurse’s baby develops NEC
Written by Ryland’s mother, Margaret Fontanilla When I started working in the NICU as a new graduate nurse, I felt like a baby myself at 21 years old. More than a decade later, I gave birth to Ryland at 25…
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