Category: NEC Society Blog


9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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NEC Awareness Day (May 17)

Please help us raise awareness and funds to build a world without necrotizing enterocolitis! World NEC Awareness Day is May 17.  NEC is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up…

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Earth Day is April 22!

Earth Day 2021 is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor…

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NICUs Should Give Books to Their Babies

Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…

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Rare is everywhere, including in the NICU.

Rare Disease Day is February 28th. Ask any NICU parent or healthcare provider and they are likely to tell you that NEC is not rare in the NICU. NEC affects thousands of premature and medically fragile infants every year. Indeed,…

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Registration Open for NEC 2021

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Congenital Heart Defect Awareness Week

Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…

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NEC Research Priorities

What areas of NEC research are important to you?

Necrotizing enterocolitis (NEC) is a multifactorial intestinal disease that causes 1 in 10 deaths in US NICUs. NEC affects medically fragile babies in their first weeks and months of life. Undoubtedly, NEC is a devastating disease and infants who survive…

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NEC Society collaborates with ISAPP to help inform parents about probiotics

More than 50 clinical trials on probiotics and necrotizing enterocolitis (NEC) have been published, prompting some medical organizations to provide guidance and recommendations on the use of probiotics with infants who are at increased risk of NEC. As the NEC…

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Can concentrated mother’s milk help to prevent NEC?

Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…

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