Category: Raising Awareness


NEC Society Founder, Director Appointed to PCORI’s Patient Engagement Advisory Panel

The Patient-Centered Outcomes Research Institute (PCORI) has appointed the founder and director of the NEC Society, Jennifer Canvasser, to serve on their Patient Engagement Advisory Panel. Jennifer is a macropractice social worker, PCORI Ambassador, and a bereaved mother. She completed…

Read More

PCORI’s Associate Director of Clinical Effectiveness and Decision Science to Present at NEC Symposium

The NEC Society is honored to welcome Dr. Anne Trontell to the NEC Symposium faculty team. Dr. Trontell serves as the Associate Director of Clinical Effectiveness and Decision Science Program at the Patient-Centered Outcomes Research Institute (PCORI), where she helps to oversee…

Read More

How to Explain When NEC Rates Persist – Even When a NICU Does Everything “Right”

Written by the NEC Society’s scientific advisor, Ravi Patel, MD, MSc, Associate Professor of Pediatrics, Emory University School of Medicine Five years ago, we embarked on a quality improvement effort to decrease the rates of NEC at our center. I…

Read More

NEC Symposium to Address Disparities in the Care of Fragile Infants

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan, with support from PCORI, is proud to announce the NEC Symposium in Ann Arbor will open with a session that addresses disparities in the…

Read More

Defining NEC: beginning to shed light in a dark room

Written by Dr. Steven Mcelroy, a neonatologist at the University of Iowa  “The beginning of wisdom is to call things by their right names” –Old Chinese Proverb Necrotizing enterocolitis (NEC) is one of the oldest diagnoses in the field of…

Read More

NEC Society Receives PCORI Engagement Award

The NEC Society has received an Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the 2019 NEC Symposium. The NEC Symposium is made possible through a partnership between the NEC Society and the Section of Pediatric Surgery…

Read More

VIDEO: NEC Prevention Through Collaboration

Check out our new video designed to encourage providers and patient-families to partner to improve care for babies!

Read More

The Story Behind the Tree of Courage Painting

By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC  My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…

Read More

Patient-Family Keynote Panel Announced for 2019 NEC Symposium

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan C.S. Mott Children’s Hospital, is thrilled to announce the Patient-Family Keynote Panel at the 2019 NEC Symposium. The goal of the Patient-Family Panel is…

Read More

NEC Awareness Day: What You Can Do

Nonprofit organizations from around the world are uniting to declare May 17th NEC Awareness Day. This international day will elevate the conversation around this devastating disease. NEC (necrotizing enterocolitis) is a leading cause of death for premature and medically fragile…

Read More