Category: Raising Awareness


NEC Society Receives $250,000 Research Capacity Award

The NEC Society has received a $250,000 Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the organization’s two-year research capacity building project. This PCORI award will advance the NEC Society’s ability to drive patient-centered outcomes research (PCOR)…

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Human Milk Fortifier in the NICU – we want to hear from you!

The NEC Society has launched a research project to gain a better understanding of how the label “Human Milk Fortifier” is used and interpreted by parents and providers in the NICU. Parents and providers are encouraged to consider participating if:…

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NEC Society Board of Directors Gives Full-Term Cardiac NEC Families a Seat at the Table

The NEC Society is dedicated to building a world without necrotizing enterocolitis (NEC). While NEC often impacts babies born prematurely, the NEC Society’s patient-families have helped us to understand that NEC also affects babies born full-term, with congenital heart defects,…

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NEC Society Welcomes Amena Mebane to Board of Directors

The NEC Society recognizes the importance of integrating patient-families into every aspect of our organization. At the NEC Society, patient-families co-lead research, co-chair meetings, and co-author manuscripts. Accordingly, the NEC Society is proud to welcome Amena Mebane to the organization’s…

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NEC Society’s 10-step guide for an All-In Meeting

The NEC Symposium was an incredible success and everyone wants to know how we did it. Why and how was the NEC Symposium different from other medical conferences? For starters, unlike other medical conferences, the NEC Symposium – like the…

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NEC Society Welcomes Distinguished Attorney to Board of Directors

The NEC Society, a 501(c)(3) non-profit organization dedicated to eliminating the neonatal disease necrotizing enterocolitis, is thrilled to welcome Adam Masin, Esq., to the organization’s Board of Directors. Adam Masin, a partner at the law firm Shipman & Goodwin LLP…

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Learning to Live After Loss

Melissa Dlugolecki and Jennifer Canvasser share a love for running, healthy lifestyles, and green smoothies. But, unfortunately, that’s not what brought them together. Melissa and Jennifer each lost a child to necrotizing enterocolitis, and their children, Leyden and Micah, brought…

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NEC Symposium

2019 NEC Symposium Summary now available!

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…

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Working Through Infertility, NEC, and Child Loss as an L&D Nurse

Written by Julie Cavellini, Labor & Delivery nurse and mother of Brooks and Carys Cossey After struggling with infertility for years, I was ecstatic to finally be pregnant with my son, Brooks. After three rounds of IVF, I was willing to do…

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