Category: Raising Awareness


How the NEC Society is Striving to Advance Diversity, Equity, and Inclusion

Written by Jennifer Canvasser, founder and director of the NEC SocietyThis originally appeared on GlobalGenes.org My son Micah spent months in the NICU and PICU. During his hospitalization, I learned what it means to be vulnerable, isolated, and powerless. It…

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Fall 2020 Webinar Series

We are delighted to announce our Fall 2020 Webinar Series! Please check out the details below for the dates, topics, and line up of speakers.  Register by clicking here  Cardiac NEC Presentations by Jennifer Canvasser, Melissa Dlugolecki, Amy Hair, Kaitlin…

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Finding Purpose: the Zuri Nzilani Foundation

Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…

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Black Breastfeeding Week 2020

Black Breastfeeding Week is held annually from August 25 – 31, during the last week of Breastfeeding Awareness Month. Necrotizing enterocolitis (NEC) disproportionately affects Black infants and the best way to help prevent NEC is with mother’s milk. Yet, Black…

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NEC Society Launches Research Project on Long-Term Outcomes of NEC

Thanks to our incredible patient-family community, we are proud to launch this survey that seeks to understand how NEC affects children, families, and young adult NEC survivors, years after their original NEC diagnosis.  For parents/caregivers of children diagnosed with NEC…

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World Breastfeeding Week 2020

Providing premature and medically fragile infants with human milk offers the most protection against necrotizing enterocolitis (NEC). That’s why the NEC Society joins the global community in recognizing and celebrating World Breastfeeding Week (WBW) each year. WBW takes place on…

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From a NICU Mother to a NICU Nurse

Written by Marlayna McBride, RN, mother of Baby Madilyn Our daughter Madilyn was born via emergency cesarean thirteen weeks prematurely. She was delivered at a small community hospital, and was immediately transported to a level III NICU. My husband and…

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NEC Society Welcomes Linseigh Green to Board of Directors

The Necrotizing Enterocolitis (NEC) Society is proud to welcome Linseigh Green to the Board of Directors. The Board oversees the organization’s operations, projects, and research, while working to ensure they align with the NEC Society’s vision and values. The Board…

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Check out the NEC Society’s Inclusivity Statement

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How the Pandemic Aggravates NICU Life

Written by Awanti Sambarey, PhD, the mother of Baby Indira. “Though she be but little, she is fierce” – William Shakespeare Nothing prepares you to have a preterm baby. My pregnancy was wonderful, and I did everything “right” – from…

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