Category: Raising Awareness


NEC Society Welcomes Nurse Scientist to Board of Directors

The NEC Society, a 501(c)(3) organization, is thrilled to welcome Jenny Quinn, PhD, RN, NNP to the Board of Directors. Dr. Quinn is a Neonatal Nurse Practitioner at NorthBay Healthcare and serves on the Perinatal Quality Improvement Panel for the…

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Once My Child, Always My Child

October is Pregnancy and Infant Loss Awareness Month. Written by Jennifer Canvasser, Founder and Director of the NEC Society “How many kids do you have?” “Are they your only two?” “Do you have other children?” These are easy questions. I…

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NEC Society Welcomes Jacynta Brewton to Board of Directors

The NEC Society is honored to welcome Jacynta Brewton to the Board of Directors. Jacynta is a major gifts fundraiser at Emory University, and the Editor-in-Chief and Chief Operations Officer for Emerge Woman Magazine. She has served as National President…

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Webinar Series on Human Milk and the Prevention of NEC

For premature and medically fragile babies, breast milk can be a lifesaving intervention. We are just beginning to understand precisely how breast milk protects the health of our most vulnerable neonates. Our webinar series will explore evidence-based practices for optimizing…

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NEC Society Welcomes Dr. Jochen Profit to Scientific Advisory Council

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Jochen Profit to the organization’s Scientific Advisory Council. Dr. Profit is a neonatologist at the Lucile Packard Children’s Hospital at Stanford University and Chief Quality Officer for the…

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NEC Society Receives $250,000 Research Capacity Award

The NEC Society has received a $250,000 Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the organization’s two-year research capacity building project. This PCORI award will advance the NEC Society’s ability to drive patient-centered outcomes research (PCOR)…

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Human Milk Fortifier in the NICU – we want to hear from you!

This survey closed on September 23, 2019. Please stay tuned as we analyze the results! The NEC Society launched a research project to gain a better understanding of how the label “Human Milk Fortifier” is used and interpreted by parents…

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NEC Society Board of Directors Gives Full-Term Cardiac NEC Families a Seat at the Table

The NEC Society is dedicated to building a world without necrotizing enterocolitis (NEC). While NEC often impacts babies born prematurely, the NEC Society’s patient-families have helped us to understand that NEC also affects babies born full-term, with congenital heart defects,…

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NEC Society Welcomes Amena Mebane to Board of Directors

The NEC Society recognizes the importance of integrating patient-families into every aspect of our organization. At the NEC Society, patient-families co-lead research, co-chair meetings, and co-author manuscripts. Accordingly, the NEC Society is proud to welcome Amena Mebane to the organization’s…

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NEC Society’s 10-step guide for an All-In Meeting

The NEC Symposium was an incredible success and everyone wants to know how we did it. Why and how was the NEC Symposium different from other medical conferences? For starters, unlike other medical conferences, the NEC Symposium – like the…

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