Who We Are

The NEC Society is a collaborative organization dedicated to building a world without necrotizing enterocolitis. We are working to better understand, prevent, and treat this devastating neonatal intestinal disease. The NEC Society was launched in January of 2014 by Jennifer Canvasser after her son died from complications of NEC just before his first birthday. The organization is led by Jennifer Canvasser and Erin Umberger, who lost her daughter Sarah to NEC.

The NEC Society intentionally elevates the voices of women, people of color, and individuals with rare or unique experiences to share, as they bring critical insight and exponentially advance the NEC Society’s vision of a world without NEC.

We are proud to bring both the patient-family perspective and an evidence-based clinical perspective to all of our work. Families who have been impacted by NEC join us from around the world. The members of the NEC Society’s Scientific Advisory Council are among the most experienced NEC clinicians and researchers. Both groups are critical to the NEC Society’s vision of building a world without necrotizing enterocolitis.

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