Who We Are

The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC.

We are proud to bring both the family perspective and an evidence-based clinical perspective to all of our work. NEC-impacted families, called “NEC Advocates,” join us from nearly all 50 U.S. states and 13 countries. The members of the NEC Society’s Scientific Advisory Council are among the most experienced NEC clinicians and researchers in the world. Both groups are critical to the vision and work of the NEC Society.


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