Who We Are
The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this devastating neonatal intestinal disease. The NEC Society was launched in January of 2014 by Jennifer Canvasser after her son died from complications of NEC just before his first birthday.
The NEC Society’s Scientific Advisors are experienced clinicians and researchers focused on combining the patient-family perspective with solutions based on the best available scientific evidence. Families from around the world are fundamental to accelerating the NEC Society’s mission to improve outcomes for the most vulnerable infants at risk of NEC. The NEC Society intentionally elevates the voices of women, individuals from diverse backgrounds, the LGBTQ+ community, people with disabilities, and marginalized groups, as they bring critical insight and advance the NEC Society’s vision of a world without NEC. The NEC Society’s Inclusivity Policy is available here.
What We Do
NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. Our vision is to build a world without NEC and we do this by accelerating research, advocacy, and education. You can learn about our resources, research projects, and upcoming events by exploring this website.
Vision: A World Without NEC
Strategies: Education, Advocacy, and Research
Research has shown that there are ways to help prevent this devastating disease. We are working to improve outcomes, raise awareness, and drive patient-centered research. Join us.