Category: News


NEC Society Statement on FDA Warning

Click to read our full two-page statement Context: The FDA recently issued communications regarding the use of probiotics in neonates: https://www.fda.gov/news-events/press-announcements/fda-raises-concerns-about-probiotic-products-sold-use-hospitalized-preterm-infants https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/abbott-laboratories-669353-10242023 https://www.fda.gov/media/172606/download https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/infinant-health-inc-formerly-evolve-biosystems-inc-667715-09282023

Read More

NEC Symposium Executive Summary- Now Available!

We’re thrilled to announce the 2023 NEC Symposium will take place in San Diego, CA at the Loews Coronado Bay Resort! Registration will open in the coming months. If you complete this form, we’ll send you a calendar invite for August…

Read More

Forever Our Little One – a storybook for bereaved families

Click here to watch the KCRA News Interview featuring Forever Our Little One. Click play & listen to CapRadio NPR interview with Jennifer Canvasser. Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One,…

Read More

NEC Society Wave of Light

October is Pregnancy & Infant Loss Awareness Month, and October 15 is Pregnancy & Infant Loss Remembrance Day. The Wave of Light is observed on October 15th at 7pm. Around the world, people will light a candle at 7pm local…

Read More

Grandparents holding Grandbabies in their hearts

Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…

Read More

CA Declares May 17 NEC Awareness Day

Sacramento, California – The Necrotizing Enterocolitis (NEC) Society is grateful to announce that California has declared May 17th as NEC Awareness Day with ACR 69. This resolution reflects the tireless dedication and advocacy by the NEC Society, its founder, Jennifer…

Read More

NEC Society Welcomes New Board Members

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Martin Blakely, MD, MS and Simone Rosito, MA to the organization’s Board of Directors. Martin Blakely is a pediatric surgeon and scientist who has dedicated his career to understanding and improving outcomes…

Read More

Forever Our Little One – a storybook for bereaved families

Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…

Read More

May is NEC Awareness Month

World NEC Awareness Day is May 17.  Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…

Read More

CEO of the American Academy of Pediatrics to Keynote NEC Symposium

The NEC Society is honored to announce that Mark Del Monte, JD will provide the keynote presentation on advocacy at the NEC Symposium taking place in San Diego, CA, August 28 – 30, 2023. Mark is the CEO/Executive Vice President…

Read More