NEC SocietyCategory: News
May is NEC Awareness Month
World NEC Awareness Day is May 17. Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…
Read MoreAmena Mebane to Keynote NEC Symposium
The NEC Society is honored to announce that Amena Mebane, Esq. will provide the opening keynote at the NEC Symposium taking place in San Diego, CA, August 28 – 30, 2023. Amena joined the NEC Society’s Board of Directors shortly after…
Read MoreCEO of the American Academy of Pediatrics to Keynote NEC Symposium
The NEC Society is honored to announce that Mark Del Monte, JD will provide the keynote presentation on advocacy at the NEC Symposium taking place in San Diego, CA, August 28 – 30, 2023. Mark is the CEO/Executive Vice President…
Read MoreNEC Society Welcomes Dr. Susan Hintz to Scientific Advisory Council
The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Susan Hintz to the organization’s Scientific Advisory Council. Dr. Hintz is a neonatologist and perinatal epidemiologist at Stanford University. Dr. Hintz is dedicated to improving outcomes for high-risk infants…
Read MoreResearch That Matters to Patients
By Linseigh Green, NEC Society Outreach Manager After graduating from NYU, the NEC Society invited me to share my story of growing up as a NEC survivor. At the 2019 NEC Symposium, I told the ballroom full of clinicians about…
Read MoreNEC Society Welcomes Development Director!
The NEC Society is thrilled to welcome Julia Goldstein as our Development Director. Julia has over 20 years of professional fundraising experience in the nonprofit sector, as well as a deeply personal appreciation for the power of giving. Julia was…
Read MoreWhen the NICU nurse’s baby develops NEC
Written by Ryland’s mother, Margaret Fontanilla When I started working in the NICU as a new graduate nurse, I felt like a baby myself at 21 years old. More than a decade later, I gave birth to Ryland at 25…
Read MoreNEC Society Welcomes Dr. Samir Gadepalli to Board of Directors
The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Samir Gadepalli to the organization’s Board of Directors. Dr. Gadepalli is a pediatric surgeon at the University of Michigan in Ann Arbor who served on the Scientific Advisory…
Read MoreNEC Society & partners receive $1M award
NEC Society Research Partners Awarded $1 Million by Chan Zuckerberg Initiative Davis, CA – The NEC Society, working in partnership with two UNC-Chapel Hill researchers, will lead a $1 million CZI project titled “Integrating Patients to Accelerate the Science Towards…
Read MoreRunning for a World Without NEC
You can support the NEC Society team with a donation! On December 4th, our running team will complete the California International Marathon to raise funds and awareness for the NEC Society. The strength and support from this community will push…
Read More