Category: News


Rare is everywhere, including in the NICU.

Rare Disease Day is February 28th. Ask any NICU parent or healthcare provider and they are likely to tell you that NEC is not rare in the NICU. NEC affects thousands of premature and medically fragile infants every year. Indeed,…

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Congenital Heart Defect Awareness Week

Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…

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NEC Society collaborates with ISAPP to help inform parents about probiotics

More than 50 clinical trials on probiotics and necrotizing enterocolitis (NEC) have been published, prompting some medical organizations to provide guidance and recommendations on the use of probiotics with infants who are at increased risk of NEC. As the NEC…

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Can concentrated mother’s milk help to prevent NEC?

Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…

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2020 Year in Review

Like each of us, the NEC Society began 2020 with specific plans, goals, and a vision for the possibilities of 2020. Of course, our best-laid plans were promptly upended when the pandemic swept across the country. Undoubtedly, this year has…

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Remembering Dr. Ira Adams-Chapman

The NEC Society is grateful for all that Dr. Ira Adams-Chapman contributed to our community and the neonatal field. We had the privilege of working with her through our efforts to better understand and help improve the long-term outcomes for…

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NEC Society Charity Run/Walk

Before the pandemic, the NEC Society completed the California International Marathon (CIM) each year in honor of babies affected by NEC and to raise funds and awareness to advance our mission. We’re hosted a virtual Charity Run/Walk on December 12…

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How the NEC Society is Striving to Advance Diversity, Equity, and Inclusion

Written by Jennifer Canvasser, founder and director of the NEC SocietyThis originally appeared on GlobalGenes.org My son Micah spent months in the NICU and PICU. During his hospitalization, I learned what it means to be vulnerable, isolated, and powerless. It…

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Fall 2020 Webinar Series

Our Fall 2020 Webinar Series attracted more than 700 registrants from over 70 countries. Links to the recordings and slides are available below. Please join our email list to stay tuned for our 2021 webinars and virtual sessions!  Lessons From…

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Finding Purpose: the Zuri Nzilani Foundation

Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…

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