Category: NEC family stories


From Surviving NEC to Studying at NYU

Written by Linseigh Green, NEC Survivor  Why couldn’t I have been born with a more romantic disease? Not that diseases are romantic, but of all the medical conditions, particularly those with long term effects, why was I stuck with the…

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Learning to Live after Losing Leyden

Written by Leyden’s mama, Melissa Dlugolecki The NEC Society invites you to check out Melissa’s website and blog by visiting ThriveWithMelissad.com There isn’t a day that passes where I don’t wonder what things may be like if I had any idea…

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The Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros

Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…

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Baby Desmond: a story of survival

Written by Desmond’s mother: Alex Boatright Baby Desmond was born at 29 weeks gestation. Early on he was feisty and strong. We even talked about transferring him to another hospital with a lower level NICU to make room for the…

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A NICU Mother Becomes a NICU Nurse

Written by Madilyn’s mother: Marlayna McBride, RN  Our daughter Madilyn (Maddy) Mathea McBride was born via emergency cesarean in 2009, thirteen weeks prematurely. She was delivered at a small community hospital, and was immediately transported to a Sacramento level III…

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Emergency Surgery, Complications & Hope- Claire’s Story

One family’s NEC experience

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Lakevia’s Story- An NEC Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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Luke’s Story

October 15 is Pregnancy & Infant Loss Awareness Day. The NEC Society remembers. Baby Luke was a deeply loved son and brother…this is his story.

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Hope’s Story

The NEC Society is honored to share stories of babies impacted by NEC- this is Hope’s story. By Hope’s Mom: After over 8 years of trying and many fertility treatments our dreams finally came true and I got pregnant.  The…

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Baby Alexander Beat the Odds and Survived NEC

Written by Baby Alexander’s Mother, Alicia.  Baby Alexander was born at 22 weeks gestation on November 17, 2014, weighing just 1 lb. 6 oz. He was given little to no chance of survival.  As his mother, I was overwhelmed and…

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