NEC SocietyCategory: NEC family stories
From Surviving NEC to Studying at NYU
Written by Linseigh Green, NEC Survivor Why couldn’t I have been born with a more romantic disease? Not that diseases are romantic, but of all the medical conditions, particularly those with long term effects, why was I stuck with the…
Read MoreLearning to Live after Losing Leyden
Written by Leyden’s mama, Melissa Dlugolecki The NEC Society invites you to check out Melissa’s website and blog by visiting ThriveWithMelissad.com There isn’t a day that passes where I don’t wonder what things may be like if I had any idea…
Read MoreThe Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros
Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…
Read MoreBaby Desmond: a story of survival
Written by Desmond’s mother: Alex Boatright Baby Desmond was born at 29 weeks gestation. Early on he was feisty and strong. We even talked about transferring him to another hospital with a lower level NICU to make room for the…
Read MoreA NICU Mother Becomes a NICU Nurse
Written by Madilyn’s mother: Marlayna McBride, RN Our daughter Madilyn (Maddy) Mathea McBride was born via emergency cesarean in 2009, thirteen weeks prematurely. She was delivered at a small community hospital, and was immediately transported to a Sacramento level III…
Read More
Lakevia’s Story- An NEC Survivor’s Experience
Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.
Read MoreLuke’s Story
October 15 is Pregnancy & Infant Loss Awareness Day. The NEC Society remembers. Baby Luke was a deeply loved son and brother…this is his story.
Read MoreHope’s Story
The NEC Society is honored to share stories of babies impacted by NEC- this is Hope’s story. By Hope’s Mom: After over 8 years of trying and many fertility treatments our dreams finally came true and I got pregnant. The…
Read More