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NEC Research Priorities
Necrotizing enterocolitis (NEC) is a multifactorial intestinal disease that causes 1 in 10 deaths in US NICUs. NEC affects medically fragile babies in their first weeks and months of life. Undoubtedly, NEC is a devastating disease and infants who survive…
Read More2020 Year in Review
Like each of us, the NEC Society began 2020 with specific plans, goals, and a vision for the possibilities of 2020. Of course, our best-laid plans were promptly upended when the pandemic swept across the country. Undoubtedly, this year has…
Read MoreNEC Society Receives $450,000 Award from Chan Zuckerberg Initiative
The Necrotizing Enterocolitis (NEC) Society is one of 30 patient-led organizations to become part of the Chan Zuckerberg Initiative’s Rare As One Network. The Rare As One Network aims to support patient communities in accelerating research and driving progress in…
Read MoreNEC Society Receives $250,000 Research Capacity Award
The NEC Society has received a $250,000 Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the organization’s two-year research capacity building project. This PCORI award will advance the NEC Society’s ability to drive patient-centered outcomes research (PCOR)…
Read MoreNEC Society Shop is now open!
All proceeds go directly toward our mission to build a world without NEC!
Read MoreVIDEO: NEC Prevention Through Collaboration
Check out our new video designed to encourage providers and patient-families to partner to improve care for babies!
Read MoreNEC Society Launches Online Support Community for Families Impacted by NEC!
The NEC Society is thrilled to team up with Inspire to launch an online support community for families impacted by necrotizing enterocolitis. The vision for NEC Society Connects is to provide impacted families with a sense of community throughout their…
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