Category: NEC family stories


Honoring My Son by Working to Reduce the Burden of NEC

Written by Guy’s mother, Joanne Ferguson, contributor to the Special Interest Group (SIGNEC) in the United Kingdom This picture of my son, Guy, is used to raise awareness of what is possibly the most complex condition that affects premature babies….

Read More

Raising Awareness in Honor of Our Son

Written by Morrison and Dwight’s mother, Heather Driscoll After struggling with infertility for two years and spending thousands of dollars, we were finally pregnant. With twins. After all that pain and suffering, I smiled at the thought of being repaid with…

Read More

Baby Zachary, a 36-Weeker who Developed NEC

Written by Sarah Landry, Zachary’s mother After a few miscarriages and the birth of our oldest son, Jackson, we were thrilled to find out we were pregnant with our second baby boy. My previous pregnancies were not easy and I…

Read More

From Surviving NEC to Studying at NYU

Written by Linseigh Green, NEC Survivor  Why couldn’t I have been born with a more romantic disease? Not that diseases are romantic, but of all the medical conditions, particularly those with long term effects, why was I stuck with the…

Read More

Learning to Live after Losing Leyden

Written by Leyden’s mama, Melissa Dlugolecki There isn’t a day that passes where I don’t wonder what things may be like if I had any idea on the existence of and the severity of NEC. Would my almost-four-year-old be crawling on…

Read More

The Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros

Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…

Read More

Baby Desmond: a story of survival

Written by Desmond’s mother: Alex Boatright Baby Desmond was born at 29 weeks gestation. Early on he was feisty and strong. We even talked about transferring him to another hospital with a lower level NICU to make room for the…

Read More

Emergency Surgery, Complications & Hope- Claire’s Story

One family’s NEC experience

Read More

Luke’s Story

October 15 is Pregnancy & Infant Loss Awareness Day. The NEC Society remembers. Baby Luke was a deeply loved son and brother…this is his story.

Read More

Hope’s Story

The NEC Society is honored to share stories of babies impacted by NEC- this is Hope’s story. By Hope’s Mom: After over 8 years of trying and many fertility treatments our dreams finally came true and I got pregnant.  The…

Read More