Category: NEC family stories


Baby Zachary, a 36-Weeker who Developed NEC

Written by Sarah Landry, Zachary’s mother After a few miscarriages and the birth of our oldest son, Jackson, we were thrilled to find out we were pregnant with our second baby boy. My previous pregnancies were not easy and I…

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From Surviving NEC to Studying at NYU

Written by Linseigh Green, NEC Survivor  Why couldn’t I have been born with a more romantic disease? Not that diseases are romantic, but of all the medical conditions, particularly those with long term effects, why was I stuck with the…

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Learning to Live after Losing Leyden

Written by Leyden’s mama, Melissa Dlugolecki The NEC Society invites you to check out Melissa’s website and blog by visiting ThriveWithMelissad.com There isn’t a day that passes where I don’t wonder what things may be like if I had any idea…

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The Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros

Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…

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Baby Desmond: a story of survival

Written by Desmond’s mother: Alex Boatright Baby Desmond was born at 29 weeks gestation. Early on he was feisty and strong. We even talked about transferring him to another hospital with a lower level NICU to make room for the…

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Emergency Surgery, Complications & Hope- Claire’s Story

One family’s NEC experience

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Luke’s Story

October 15 is Pregnancy & Infant Loss Awareness Day. The NEC Society remembers. Baby Luke was a deeply loved son and brother…this is his story.

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Hope’s Story

The NEC Society is honored to share stories of babies impacted by NEC- this is Hope’s story. By Hope’s Mom: After over 8 years of trying and many fertility treatments our dreams finally came true and I got pregnant.  The…

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Baby Alexander Beat the Odds and Survived NEC

Written by Baby Alexander’s Mother, Alicia.  Baby Alexander was born at 22 weeks gestation on November 17, 2014, weighing just 1 lb. 6 oz. He was given little to no chance of survival.  As his mother, I was overwhelmed and…

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How Babywearing in the NICU Changed My Life

My twins’ premature birth was traumatizing. Micah and Zachary were born at 27 weeks gestation, weighing just over two pounds each. As the twins fought to live, our family and friends surrounded us with love and support. During the twins’…

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