Category: NEC stories


10 Things to Know When Your Baby is Diagnosed with NEC

Written by Jennifer Canvasser, founder and executive director of the NEC Society, with support from the NEC Society team. This resource and others have been developed to be included in the NEC Society’s Empowerment/Bereavement packets for families recently affected by…

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Prioritize Donor Milk Like We Prioritize Donor Blood

Written by Jennifer Canvasser, founder, and executive director of NEC Society After developing necrotizing enterocolitis (NEC), my son Micah developed end-stage renal disease and received 211 units of blood. Micah would need a kidney transplant to survive, so I organized…

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10 Things for Bereaved Parents to Know

Written by Jennifer Canvasser, founder and director of the NEC Society, with support from the NEC Society team. This resource and others have been developed to be included in the NEC Society’s Empowerment/Bereavement packets for families recently affected by necrotizing…

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Ahmaari’s Story of Surviving NEC

Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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NEC Awareness Day (May 17)

Please help us raise awareness and funds to build a world without necrotizing enterocolitis! World NEC Awareness Day is May 17.  NEC is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up…

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Earth Day is April 22!

Earth Day 2021 is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor…

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NICUs Should Give Books to Their Babies

Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…

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Congenital Heart Defect Awareness Week

Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…

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Can concentrated mother’s milk help to prevent NEC?

Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…

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