Category: NEC stories


May is NEC Awareness Month

World NEC Awareness Day is May 17.  Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…

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Earth Day is April 22!

Earth Day is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor for…

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Running for a World without NEC

The NEC Society’s running team completed the 2021 California International Marathon in honor of families affected by necrotizing enterocolitis and Wilm’s Tumor. We completed CIM for our sons, daughters, friends, and loved ones – they are stronger than any marathoner…

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Webinar: NEC Surgery Trial (NEST) Results

The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar featured Dr. Martin Blakely, who led the NEST work, along with a panel of experts. The recording…

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10 Things to Know When Your Baby is Diagnosed with NEC

Written by Jennifer Canvasser, founder and executive director of the NEC Society, with support from the NEC Society team. This resource and others have been developed to be included in the NEC Society’s Empowerment/Bereavement packets for families recently affected by…

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Prioritize Donor Milk Like We Prioritize Donor Blood

Written by Jennifer Canvasser, founder, and executive director of NEC Society After developing necrotizing enterocolitis (NEC), my son Micah developed end-stage renal disease and received 211 units of blood. Micah would need a kidney transplant to survive, so I organized…

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10 Things for Bereaved Parents to Know

Written by Jennifer Canvasser, founder and director of the NEC Society, with support from the NEC Society team. If you’d like to support this work, please visit NECsociety.kindful.com July is Bereaved Parents Awareness Month.Years have passed since I held my…

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Ahmaari’s Story of Surviving NEC

Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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NICUs Should Give Books to Their Babies

Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…

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