Category: NEC stories


As the COVID-19 crisis rages, we know that babies are still developing necrotizing enterocolitis (NEC). While many of our events have been canceled, we hope you’ll join us as we recognize World NEC Awareness Day on May 17.  NEC is…

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2019 Year in Review

Thanks to our generous community of supporters, in 2019 the NEC Society brought us closer to a world without necrotizing enterocolitis. Over the last year, we’ve engaged thousands of diverse stakeholders from around the globe. Together, we’ve launched research projects,…

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Once My Child, Always My Child

October is Pregnancy and Infant Loss Awareness Month. Written by Jennifer Canvasser, Founder and Director of the NEC Society “How many kids do you have?” “Are they your only two?” “Do you have other children?” These are easy questions. I…

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Human Milk and the Prevention of Necrotizing Enterocolitis

For premature and medically fragile babies, breast milk can be a lifesaving intervention. The NEC Society’s webinar series on human milk covered evidence-based practices for optimizing the use of human milk with babies at increased risk of NEC, as well…

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Learning to Live After Loss

Melissa Dlugolecki and Jennifer Canvasser share a love for running, healthy lifestyles, and green smoothies. But, unfortunately, that’s not what brought them together. Melissa and Jennifer each lost a child to necrotizing enterocolitis, and their children, Leyden and Micah, brought…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…

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Working Through Infertility, NEC, and Child Loss as an L&D Nurse

Written by Julie Cavellini, Labor & Delivery nurse and mother of Brooks and Carys Cossey After struggling with infertility for years, I was ecstatic to finally be pregnant with my son, Brooks. After three rounds of IVF, I was willing to do…

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From Three to One: Giving Birth to Triplets and Losing Two to NEC

Written by, Fannie, the mother of Keaton, Dorian and Aiden.  I always wanted twins. I was 38 years old, and had just married the love of my life. I left my home and my whole life in France – my…

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Raising Awareness in Honor of Our Son

Written by Morrison and Dwight’s mother, Heather Driscoll After struggling with infertility for two years and spending thousands of dollars, we were finally pregnant. With twins. After all that pain and suffering, I smiled at the thought of being repaid with…

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The Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros

Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…

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