NEC SocietyCategory: NEC stories
Congenital Heart Defect Awareness Week
Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…
Read MoreCan concentrated mother’s milk help to prevent NEC?
Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…
Read MoreRemembering Dr. Ira Adams-Chapman
The NEC Society is grateful for all that Dr. Ira Adams-Chapman contributed to our community and the neonatal field. We had the privilege of working with her through our efforts to better understand and help improve the long-term outcomes for…
Read MoreFinding Purpose: the Zuri Nzilani Foundation
Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…
Read MoreNEC Society Welcomes Linseigh Green to Board of Directors
The Necrotizing Enterocolitis (NEC) Society is proud to welcome Linseigh Green to the Board of Directors. The Board oversees the organization’s operations, projects, and research, while working to ensure they align with the NEC Society’s vision and values. The Board…
Read MoreHow the Pandemic Aggravates NICU Life
Written by Awanti Sambarey, PhD, the mother of Baby Indira. “Though she be but little, she is fierce” – William Shakespeare Nothing prepares you to have a preterm baby. My pregnancy was wonderful, and I did everything “right” – from…
Read MoreLiving With NEC: A Survivor’s Experience
Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.
Read MoreWe Lost Our Daughter to NEC During the COVID-19 Crisis
Written by Emilia’s mother, Felicia Sears. Our daughter, Emilia Quinn Sears, was born prematurely on March 15, 2020. As this was the beginning of America’s response to the coronavirus pandemic, our family’s experience was unlike anything we could have imagined….
Read MoreNEC Awareness Day (May 17)
As the COVID-19 crisis rages, we know that babies are still developing necrotizing enterocolitis (NEC). While many of our events have been canceled, we hope you’ll join us as we recognize World NEC Awareness Day on May 17. NEC is…
Read More2019 Year in Review
Thanks to our generous community of supporters, in 2019 the NEC Society brought us closer to a world without necrotizing enterocolitis. Over the last year, we’ve engaged thousands of diverse stakeholders from around the globe. Together, we’ve launched research projects,…
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