Category: NEC stories


NEC Society & partners receive $1M award

NEC Society Research Partners Awarded $1 Million by Chan Zuckerberg Initiative Davis, CA – The NEC Society, working in partnership with two UNC-Chapel Hill researchers, will lead a $1 million CZI project titled “Integrating Patients to Accelerate the Science Towards…

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Honouring Baby Ezra

Written by Ezra’s parents, Harpreet & Tariq On July 13, 2021, I discovered the most amazing news of my life: I was pregnant with baby Ezra! This was my first pregnancy, and it caught us by surprise! Nevertheless, I was…

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Sharing Nora’s Story to Raise Awareness About NEC

Written by Nora’s parents, Johnny and Cassey We sat down to start writing Nora’s story on the nine-month anniversary of her passing. It felt fitting to spend our 4th of July sharing our girls’ story in her honor.  Nora wasn’t…

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Researchers Demonstrate Machine Learning Approach to NEC Prediction

A recent publication in BMC Bioinformatics describes a machine learning system that could potentially be used to predict NEC before the disease advances. The technology, developed by researchers at the University of Pittsburgh and Columbia University, uses a neural network…

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May is NEC Awareness Month

World NEC Awareness Day is May 17.  Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…

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Earth Day is April 22!

Earth Day is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor for…

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Running for a World without NEC

The NEC Society’s running team completed the 2021 California International Marathon in honor of families affected by necrotizing enterocolitis. We completed CIM for our sons, daughters, friends, and loved ones – they are stronger than any marathoner and their stories…

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Webinar: NEC Surgery Trial (NEST) Results

The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar featured Dr. Martin Blakely, who led the NEST work, along with a panel of experts. The recording…

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10 Things to Know When Your Baby is Diagnosed with NEC

Written by Jennifer Canvasser, founder and executive director of the NEC Society, with support from the NEC Society team. This resource and others have been developed to be included in the NEC Society’s Empowerment/Bereavement packets for families recently affected by…

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Prioritize Donor Milk Like We Prioritize Donor Blood

Written by Jennifer Canvasser, founder, and executive director of NEC Society After developing necrotizing enterocolitis (NEC), my son Micah developed end-stage renal disease and received 211 units of blood. Micah would need a kidney transplant to survive, so I organized…

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