NEC SocietyCategory: NEC stories
Learning to Live After Loss
Melissa Dlugolecki and Jennifer Canvasser share a love for running, healthy lifestyles, and green smoothies. But, unfortunately, that’s not what brought them together. Melissa and Jennifer each lost a child to necrotizing enterocolitis, and their children, Leyden and Micah, brought…
Read More9 Things You Need to Know About Necrotizing Enterocolitis
Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled…
Read MoreWorking Through Infertility, NEC, and Child Loss as an L&D Nurse
Written by Julie Cavellini, Labor & Delivery nurse and mother of Brooks and Carys Cossey After struggling with infertility for years, I was ecstatic to finally be pregnant with my son, Brooks. After three rounds of IVF, I was willing to do…
Read MoreFrom Three to One: Giving Birth to Triplets and Losing Two to NEC
Written by, Fannie, the mother of Keaton, Dorian and Aiden. I always wanted twins. I was 38 years old, and had just married the love of my life. I left my home and my whole life in France – my…
Read MoreNEC Awareness Day May 17
Join the NEC Society, Pequenos Grandes Guerreiros, and Special Interest Group in NEC as we recognize World NEC Awareness Day on May 17! NEC (necrotizing enterocolitis) is a leading cause of death for premature and medically fragile babies. 10-50% of…
Read MoreRaising Awareness in Honor of Our Son
Written by Morrison and Dwight’s mother, Heather Driscoll After struggling with infertility for two years and spending thousands of dollars, we were finally pregnant. With twins. After all that pain and suffering, I smiled at the thought of being repaid with…
Read MoreThe Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros
Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…
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How Babywearing in the NICU Changed My Life
My twins’ premature birth was traumatizing. Micah and Zachary were born at 27 weeks gestation, weighing just over two pounds each. As the twins fought to live, our family and friends surrounded us with love and support. During the twins’…
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