Category: NEC stories


Ahmaari’s Story of Surviving NEC

Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…

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9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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NEC Awareness Day (May 17)

Please help us raise awareness and funds to build a world without necrotizing enterocolitis! World NEC Awareness Day is May 17.  NEC is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up…

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Earth Day is April 22!

Earth Day 2021 is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor…

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NICUs Should Give Books to Their Babies

Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…

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Congenital Heart Defect Awareness Week

Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…

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Can concentrated mother’s milk help to prevent NEC?

Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…

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Remembering Dr. Ira Adams-Chapman

The NEC Society is grateful for all that Dr. Ira Adams-Chapman contributed to our community and the neonatal field. We had the privilege of working with her through our efforts to better understand and help improve the long-term outcomes for…

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Finding Purpose: the Zuri Nzilani Foundation

Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…

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NEC Society Welcomes Linseigh Green to Board of Directors

The Necrotizing Enterocolitis (NEC) Society is proud to welcome Linseigh Green to the Board of Directors. The Board oversees the organization’s operations, projects, and research, while working to ensure they align with the NEC Society’s vision and values. The Board…

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