NEC SocietyCategory: NEC Society Blog
We exceeded our NEC Awareness Day fundraising goal!
We are grateful and thrilled to share that we exceeded our NEC Awareness Day fundraising goal! With our global partners, the NEC Society declared May 17 as World NEC Awareness Day in 2018. Each year since, NEC Day has allowed…
Read MoreNICU Parents Need Access to Information About Probiotics
The American Academy of Pediatrics recently released its statement on probiotic use in preterm infants at risk of necrotizing enterocolitis. The NEC Society appreciates the AAP’s thoughtful review and efforts. The NEC Society has also published a statement regarding probiotics:…
Read MoreNEC 2021 Summer Webinars
The NEC Society is committed to providing learning and educational opportunities for our multidisciplinary community. In addition to the NEC Symposium, we host webinars on topics that matter most to our diverse stakeholders. We are delighted to announce our 2021…
Read MoreAhmaari’s Story of Surviving NEC
Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…
Read More9 Things You Need to Know About Necrotizing Enterocolitis
Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…
Read MoreNICUs Should Give Books to Their Babies
Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…
Read MoreRare is everywhere, including in the NICU.
Rare Disease Day is February 28th. Necrotizing enterocolitis (NEC) is not exactly rare in the NICU. NEC affects thousands of premature and medically fragile infants every year. Indeed, when your own child or family is affected by a disease like…
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Congenital Heart Defect Awareness Week
Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…
Read MoreNEC Research Priorities
Necrotizing enterocolitis (NEC) is a multifactorial intestinal disease that causes 1 in 10 deaths in US NICUs. NEC affects medically fragile babies in their first weeks and months of life. Undoubtedly, NEC is a devastating disease and infants who survive…
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