Category: NEC Society Blog


How the NEC Society is Striving to Advance Diversity, Equity, and Inclusion

Written by Jennifer Canvasser, founder and director of the NEC SocietyThis originally appeared on GlobalGenes.org My son Micah spent months in the NICU and PICU. During his hospitalization, I learned what it means to be vulnerable, isolated, and powerless. It…

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Fall 2020 Webinar Series

Our Fall 2020 Webinar Series attracted more than 700 registrants from over 70 countries. Links to the recordings and slides are available below. Please join our email list to stay tuned for our 2021 webinars and virtual sessions!  Lessons From…

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Finding Purpose: the Zuri Nzilani Foundation

Written by Ashley Wayua, Mother of Zuri and Founder of the Zuri Nzilani Foundation When my husband Ian and I learned that I was pregnant, we were excited and looked forward to becoming parents. My pregnancy was bliss until the…

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Black Breastfeeding Week 2021

Black Breastfeeding Week is held annually from August 25 – 31, during the last week of Breastfeeding Awareness Month. Necrotizing enterocolitis (NEC) disproportionately affects Black infants and the best way to help prevent NEC is with mother’s milk. Yet, Black…

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NEC Society Launches Research Project on Long-Term Outcomes of NEC

We are grateful to our patient-family community who helped to build and launch this research project, and who took the time to respond by sharing their family’s personal experience with NEC. This project seeks to understand how NEC affects children,…

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From a NICU Mother to a NICU Nurse

Written by Marlayna McBride, RN, mother of Baby Madilyn Our daughter Madilyn was born via emergency cesarean thirteen weeks prematurely. She was delivered at a small community hospital, and was immediately transported to a level III NICU. My husband and…

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NEC Society Welcomes Linseigh Green to Board of Directors

The Necrotizing Enterocolitis (NEC) Society is proud to welcome Linseigh Green to the Board of Directors. The Board oversees the organization’s operations, projects, and research, while working to ensure they align with the NEC Society’s vision and values. The Board…

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How the Pandemic Aggravates NICU Life

Written by Awanti Sambarey, PhD, the mother of Baby Indira. “Though she be but little, she is fierce” – William Shakespeare Nothing prepares you to have a preterm baby. My pregnancy was wonderful, and I did everything “right” – from…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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Check out the NEC Society’s Inclusivity Statement

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