Category: NEC Society Blog


NEC Society Welcomes Development Director!

The NEC Society is thrilled to welcome Julia Goldstein as our Development Director. Julia has over 20 years of professional fundraising experience in the nonprofit sector, as well as a deeply personal appreciation for the power of giving. Julia was…

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When the NICU nurse’s baby develops NEC

Written by Ryland’s mother, Margaret Fontanilla When I started working in the NICU as a new graduate nurse, I felt like a baby myself at 21 years old. More than a decade later, I gave birth to Ryland at 25…

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NEC Society Welcomes Dr. Samir Gadepalli to Board of Directors

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Samir Gadepalli to the organization’s Board of Directors. Dr. Gadepalli is a pediatric surgeon at the University of Michigan in Ann Arbor who served on the Scientific Advisory…

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NEC Society & partners receive $1M award

NEC Society Research Partners Awarded $1 Million by Chan Zuckerberg Initiative Davis, CA – The NEC Society, working in partnership with two UNC-Chapel Hill researchers, will lead a $1 million CZI project titled “Integrating Patients to Accelerate the Science Towards…

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Running for a World Without NEC

You can support the NEC Society team with a donation! On December 4th, our running team will complete the California International Marathon to raise funds and awareness for the NEC Society. The strength and support from this community will push…

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Honouring Baby Ezra

Written by Ezra’s parents, Harpreet & Tariq On July 13, 2021, I discovered the most amazing news of my life: I was pregnant with baby Ezra! This was my first pregnancy, and it caught us by surprise! Nevertheless, I was…

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NEC Society Nurse Ambassadors

The NEC Society is thrilled to launch our Nurse Ambassadors for a World Without NEC! Click HERE for more information.

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Surgical NEC webinar

Many infants who develop necrotizing enterocolitis need surgery. Our October 14 webinar featured pediatric surgeons who are helping the NEC Society build a world without NEC. Our pediatric surgeons explored surgical options, the decision-making process, the focus of their research,…

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Sharing Nora’s Story to Raise Awareness About NEC

Written by Nora’s parents, Johnny and Cassey We sat down to start writing Nora’s story on the nine-month anniversary of her passing. It felt fitting to spend our 4th of July sharing our girls’ story in her honor.  Nora wasn’t…

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Researchers Demonstrate Machine Learning Approach to NEC Prediction

A recent publication in BMC Bioinformatics describes a machine learning system that could potentially be used to predict NEC before the disease advances. The technology, developed by researchers at the University of Pittsburgh and Columbia University, uses a neural network…

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