Category: Raising Awareness


Light a Candle with Us on October 15th

“We want to prevent families from suffering the lifelong, devastating heartache and grief that we will always carry with us.” Thirty years have passed since October was designated National Pregnancy and Infant Loss Awareness Month in the United States. Twelve…

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NEC Checklist by NEC-Zero Seeks to Prevent NEC

By Caroline Porter, RN, BSN; The University of Arizona College of Nursing When it comes to caring for fragile infants, many aspects need to be considered to help them thrive. Necrotizing enterocolitis (NEC) is a devastating disease that can quickly…

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NEC Society Founder, Director Appointed to PCORI’s Patient Engagement Advisory Panel

The Patient-Centered Outcomes Research Institute (PCORI) has appointed the founder and director of the NEC Society, Jennifer Canvasser, to serve on their Patient Engagement Advisory Panel. Jennifer is a macropractice social worker, PCORI Ambassador, and a bereaved mother. She completed…

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PCORI’s Associate Director of Clinical Effectiveness and Decision Science to Present at NEC Symposium

The NEC Society is honored to welcome Dr. Anne Trontell to the NEC Symposium faculty team. Dr. Trontell serves as the Associate Director of Clinical Effectiveness and Decision Science Program at the Patient-Centered Outcomes Research Institute (PCORI), where she helps to oversee…

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How to Explain When NEC Rates Persist – Even When a NICU Does Everything “Right”

Written by the NEC Society’s scientific advisor, Ravi Patel, MD, MSc, Associate Professor of Pediatrics, Emory University School of Medicine Five years ago, we embarked on a quality improvement effort to decrease the rates of NEC at our center. I…

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NEC Symposium to Address Disparities in the Care of Fragile Infants

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan, with support from PCORI and the NICHD, is proud to announce the NEC Symposium will open with a session that addresses disparities in the…

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Defining NEC: beginning to shed light in a dark room

Written by Dr. Steven Mcelroy, a neonatologist at the University of Iowa  “The beginning of wisdom is to call things by their right names” –Old Chinese Proverb Necrotizing enterocolitis (NEC) is one of the oldest diagnoses in the field of…

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NEC Society Receives PCORI Engagement Award

The NEC Society has received an Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the 2019 NEC Symposium. The NEC Symposium is made possible through a partnership between the NEC Society and the Section of Pediatric Surgery…

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VIDEO: NEC Prevention Through Collaboration

Check out our new video designed to encourage providers and patient-families to partner to improve care for babies!

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The Story Behind the Tree of Courage Painting

By Leslie Napolitano, artist of the Tree of Courage, whose grandson died from NEC  My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after being born just shy of 28 weeks gestation. Like many babies…

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