Category: NEC Society Blog


NEC Society Statement on Supreme Court Decision in Dobbs v. Jackson Women’s Health Organization

The NEC Society is driven by a profound concern for the well-being of patients and families. As such, the NEC Society unequivocally condemns the U.S. Supreme Court’s decision in Dobbs v. Jackson Women’s Health Organization. Our organization is committed to…

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2022 Champions for a world without NEC

The NEC Society is thrilled to announce our 2022 Champions for a world without NEC! The NEC Society is a patient-led nonprofit that brings together a diverse community of people who care about families affected by NEC. Together, we are…

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NEC Society’s Inclusivity Policy

The Necrotizing Enterocolitis (NEC) Society is a 501(c)(3), nonpartisan organization that deliberately prioritizes diversity. We are committed to building an inclusive community that serves as a voice for all, including the most vulnerable among us. The NEC Society intentionally supports…

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May is NEC Awareness Month

World NEC Awareness Day is May 17.  Necrotizing enterocolitis is a devastating intestinal disease that affects vulnerable infants during their first weeks and months of life. Up to 50% of the babies who get NEC will die, and survivors often…

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Earth Day is April 22!

Earth Day is April 22! At the NEC Society, we believe every day is Earth Day because healthy babies need a healthy planet to thrive. Air pollution has been linked with preterm birth and prematurity is the #1 risk factor for…

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NEC Society Welcomes Dr. Aloka Patel to Scientific Advisory Council

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Aloka Patel to the organization’s Scientific Advisory Council. Dr. Patel is a neonatologist at Rush University Children’s Hospital. Much of Dr. Patel’s work is dedicated to advancing research…

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Webinar: Presenting our Research Priorities

When it comes to necrotizing enterocolitis, there are so many unanswered questions and so few resources. Our multidisciplinary team has identified the most urgent and impactful research topics to help our community decide where to direct the limited funding and…

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Video: NEC is a mystery. Help us solve it.

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NEC Society Awarded $150,000 from Chan Zuckerberg Initiative

We are honored and grateful to share that the NEC Society has been awarded $150,000 as part of our participation in the Chan Zuckerberg Initiative’s Rare As One Network. The NEC Society was selected to join the CZI Rare As…

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NEC Research Webinars

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