Category: Raising Awareness


From Three to One: Giving Birth to Triplets and Losing Two to NEC

Written by, Fannie, the mother of Keaton, Dorian and Aiden.  I always wanted twins. I was 38 years old, and had just married the love of my life. I left my home and my whole life in France – my…

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NEC Society’s 2018 Top 10 Achievements

Throughout 2018, the NEC Society has been inspired and energized by the families, clinicians and researchers who are committed to improving outcomes and preventing necrotizing enterocolitis. With support from our generous community, here are our proudest accomplishments for 2018:  1….

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NEC Symposium Registration Now Open

The NEC Society, in partnership with the Section of Pediatric Surgery at the University of Michigan, is thrilled present the NEC Symposium, June 2 – 5, 2019 at the Michigan League in Ann Arbor. The NEC Symposium is made with support…

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NEC Society Shop is now open!

All proceeds go directly toward our mission to build a world without NEC!

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NEC Awareness Day May 17

Join the NEC Society, Pequenos Grandes Guerreiros, and Special Interest Group in NEC as we recognize World NEC Awareness Day on May 17!  NEC (necrotizing enterocolitis) is a leading cause of death for premature and medically fragile babies. 10-50% of…

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NEC Society Webinar Series on Probiotics

The NEC Society’s webinar series on probiotics attracted more than 330 participants from 23 different countries. These three educational webinars for NICU families, clinicians, and other stakeholders explored the use of probiotics in the NICU with babies at risk of…

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Probiotics and Evidence-based Medicine

By Ravi Mangal Patel, MD, MSc When I first learned about the principles of evidence-based medicine in medical school, a key lesson involved the evidence pyramid (Figure 1). The pyramid depicts the hierarchy of evidence. Atop this pyramid sits the…

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Could this be why some babies develop NEC, despite receiving human milk?

Written by Alexander Penn, PhD Necrotizing enterocolitis (NEC) is a multifactorial disease, that’s not completely understood. NEC is likely caused by a variety of factors, and often, it is likely that more than one factor must be present for NEC…

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Marathon Runners Raise Funds for NEC Society

The NEC Society has built a team of 19 runners to run the California International Marathon (CIM) in honor of babies impacted by necrotizing enterocolitis (NEC)! The 26.2 mile race will raise awareness and funds for the NEC Society, a…

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Light a Candle with Us on October 15th

“We want to prevent families from suffering the lifelong, devastating heartache and grief that we will always carry with us.” Thirty years have passed since October was designated National Pregnancy and Infant Loss Awareness Month in the United States. Twelve…

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