Category: Raising Awareness


Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

Read More

We Lost Our Daughter to NEC During the COVID-19 Crisis

Written by Emilia’s mother, Felicia Sears.  Our daughter, Emilia Quinn Sears, was born prematurely on March 15, 2020. As this was the beginning of America’s response to the coronavirus pandemic, our family’s experience was unlike anything we could have imagined….

Read More

Donor Milk Is Still Safe in the SARS-CoV-2 Pandemic

Written by Erin Hamilton Spence, MD, IBCLC Medical Director Mother’s Milk Bank of North Texas Neonatologist, Fort Worth, TX In March 2020, I was working in the NICU as my family was home on spring break. As my kids were…

Read More

NEC Awareness Day (May 17)

As the COVID-19 crisis rages, we know that babies are still developing necrotizing enterocolitis (NEC). While many of our events have been canceled, we hope you’ll join us as we recognize World NEC Awareness Day on May 17.  NEC is…

Read More

NEC Society Expands Board of Directors

The Necrotizing Enterocolitis (NEC) Society is proud to welcome Jolene Jacobs, MBA and Susan Perez, PhD, MPH to the Board of Directors. The Board of Directors oversees the NEC Society’s operations, projects, and research, while working to ensure they align…

Read More

NICHD Director to Keynote NEC Symposium

The NEC Society is honored to announce that Dr. Diana Bianchi will serve as the opening keynote speaker for the Necrotizing Enterocolitis (NEC) Symposium. Dr. Bianchi is the Director of the Eunice Kennedy Shriver National Institute of Child Health and…

Read More

NEC Society Receives $450,000 Award from Chan Zuckerberg Initiative

The Necrotizing Enterocolitis (NEC) Society is one of 30 patient-led organizations to become part of the Chan Zuckerberg Initiative’s Rare As One Network. The Rare As One Network aims to support patient communities in accelerating research and driving progress in…

Read More

How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

Read More

2019 Year in Review

Thanks to our generous community of supporters, in 2019 the NEC Society brought us closer to a world without necrotizing enterocolitis. Over the last year, we’ve engaged thousands of diverse stakeholders from around the globe. Together, we’ve launched research projects,…

Read More

A Story of Hope

Written by Dr. Ana Ruzic Do, a pediatric surgeon at the University of Kentucky For anyone who cared for Connor and his family during his 6-month NICU stay, he is the very definition of hope. Prior to meeting Connor and…

Read More