NEC SocietyCategory: NEC Society Blog
NEC 2021 Summer Webinars
The NEC Society is committed to providing learning and educational opportunities for our multidisciplinary community. In addition to the NEC Symposium, we host webinars on topics that matter most to our diverse stakeholders. We are delighted to announce our 2021…
Read MoreAhmaari’s Story of Surviving NEC
Written by Ahmaari’s mother, Necole McRae This is the story of how NEC has impacted my life and my daughter’s life. I hope as you read this, you know that you are not alone, and there are families that put…
Read More9 Things You Need to Know About Necrotizing Enterocolitis
Written by Jennifer Canvasser, founder and executive director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his…
Read MoreNICUs Should Give Books to Their Babies
Written by Jennifer Canvasser, founder and executive director of the NEC Society When my twins were born three months prematurely, I struggled with intense feelings of maternal guilt and incompetence. Throughout their time in the NICU, my twins were often…
Read MoreRare is everywhere, including in the NICU.
Rare Disease Day is February 28th. Necrotizing enterocolitis (NEC) is not exactly rare in the NICU. NEC affects thousands of premature and medically fragile infants every year. Indeed, when your own child or family is affected by a disease like…
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Congenital Heart Defect Awareness Week
Congenital Heart Defect (CHD) Awareness Week is February 7th – 14th and we are so grateful to the families who have shared their heart babies with us. While necrotizing enterocolitis (NEC) most often affects preemies, babies born at term sometimes…
Read MoreNEC Research Priorities
Necrotizing enterocolitis (NEC) is a multifactorial intestinal disease that causes 1 in 10 deaths in US NICUs. NEC affects medically fragile babies in their first weeks and months of life. Undoubtedly, NEC is a devastating disease and infants who survive…
Read MoreNEC Society collaborates with ISAPP to help inform parents about probiotics
To read the NEC Society’s Statement on Probiotics, click here. More than 50 clinical trials on probiotics and necrotizing enterocolitis (NEC) have been published, prompting some medical organizations to provide guidance and recommendations on the use of probiotics with infants…
Read MoreCan concentrated mother’s milk help to prevent NEC?
Written by Beth Schinkel, a NICU nurse and Registered Dietitian. My first experience with necrotizing enterocolitis (NEC) was early in my nursing career. I took care of a preemie in the NICU who seemed to be thriving. One night during…
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