Category: Raising Awareness


NEC Society Shop is now open!

All proceeds go directly toward our mission to build a world without NEC!

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NEC Awareness Day May 17

Join the NEC Society, Pequenos Grandes Guerreiros, and Special Interest Group in NEC as we recognize World NEC Awareness Day on May 17!  NEC (necrotizing enterocolitis) is a leading cause of death for premature and medically fragile babies. 10-50% of…

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NEC Society Webinar Series on Probiotics

The NEC Society’s webinar series on probiotics attracted more than 330 participants from 23 different countries. These three educational webinars for NICU families, clinicians, and other stakeholders explored the use of probiotics in the NICU with babies at risk of…

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Probiotics and Evidence-based Medicine

By Ravi Mangal Patel, MD, MSc When I first learned about the principles of evidence-based medicine in medical school, a key lesson involved the evidence pyramid (Figure 1). The pyramid depicts the hierarchy of evidence. Atop this pyramid sits the…

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Could this be why some babies develop NEC, despite receiving human milk?

Written by Alexander Penn, PhD Necrotizing enterocolitis (NEC) is a multifactorial disease, that’s not completely understood. NEC is likely caused by a variety of factors, and often, it is likely that more than one factor must be present for NEC…

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Marathon Runners Raise Funds for NEC Society

The NEC Society has built a team of 19 runners to run the California International Marathon (CIM) in honor of babies impacted by necrotizing enterocolitis (NEC)! The 26.2 mile race will raise awareness and funds for the NEC Society, a…

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Light a Candle with Us on October 15th

“We want to prevent families from suffering the lifelong, devastating heartache and grief that we will always carry with us.” Thirty years have passed since October was designated National Pregnancy and Infant Loss Awareness Month in the United States. Twelve…

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NEC Checklist by NEC-Zero Seeks to Prevent NEC

By Caroline Porter, RN, BSN; The University of Arizona College of Nursing When it comes to caring for fragile infants, many aspects need to be considered to help them thrive. Necrotizing enterocolitis (NEC) is a devastating disease that can quickly…

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NEC Society Founder, Director Appointed to PCORI’s Patient Engagement Advisory Panel

The Patient-Centered Outcomes Research Institute (PCORI) has appointed the founder and director of the NEC Society, Jennifer Canvasser, to serve on their Patient Engagement Advisory Panel. Jennifer is a macropractice social worker, PCORI Ambassador, and a bereaved mother. She completed…

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PCORI’s Associate Director of Clinical Effectiveness and Decision Science to Present at NEC Symposium

The NEC Society is honored to welcome Dr. Anne Trontell to the NEC Symposium faculty team. Dr. Trontell serves as the Associate Director of Clinical Effectiveness and Decision Science Program at the Patient-Centered Outcomes Research Institute (PCORI), where she helps to oversee…

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