Category: NEC Society Blog


NEC Society Welcomes Linseigh Green to Board of Directors

The Necrotizing Enterocolitis (NEC) Society is proud to welcome Linseigh Green to the Board of Directors. The Board oversees the organization’s operations, projects, and research, while working to ensure they align with the NEC Society’s vision and values. The Board…

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Check out the NEC Society’s Inclusivity Statement

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How the Pandemic Aggravates NICU Life

Written by Awanti Sambarey, PhD, the mother of Baby Indira. “Though she be but little, she is fierce” – William Shakespeare Nothing prepares you to have a preterm baby. My pregnancy was wonderful, and I did everything “right” – from…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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We Lost Our Daughter to NEC During the COVID-19 Crisis

Written by Emilia’s mother, Felicia Sears.  Our daughter, Emilia Quinn Sears, was born prematurely on March 15, 2020. As this was the beginning of America’s response to the coronavirus pandemic, our family’s experience was unlike anything we could have imagined….

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Donor Milk Is Still Safe in the SARS-CoV-2 Pandemic

Written by Erin Hamilton Spence, MD, IBCLC Medical Director Mother’s Milk Bank of North Texas Neonatologist, Fort Worth, TX In March 2020, I was working in the NICU as my family was home on spring break. As my kids were…

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NEC Society Expands Board of Directors

The Necrotizing Enterocolitis (NEC) Society is proud to welcome Jolene Jacobs, MBA and Susan Perez, PhD, MPH to the Board of Directors. The Board of Directors oversees the NEC Society’s operations, projects, and research, while working to ensure they align…

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NICHD Director to Keynote NEC Symposium

The NEC Society is honored to announce that Dr. Diana Bianchi will serve as the opening keynote speaker for the Necrotizing Enterocolitis (NEC) Symposium. Dr. Bianchi is the Director of the Eunice Kennedy Shriver National Institute of Child Health and…

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NEC Society Receives $450,000 Award from Chan Zuckerberg Initiative

The Necrotizing Enterocolitis (NEC) Society is one of 30 patient-led organizations to become part of the Chan Zuckerberg Initiative’s Rare As One Network. The Rare As One Network aims to support patient communities in accelerating research and driving progress in…

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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