The NEC Society encourages families impacted by NEC to explore these resources for NICU families:
Breast Milk for Premature and Fragile Infants:
General NEC Parent Support:
- Closed Facebook group: NEC Parents Support Group
- Closed Facebook group: NEC (Necrotizing Enterocolitis)
- Babies with NEC – unfortunately this website has not been active in over a year, but it still contains helpful information.
- Graham’s Foundation: Created by parents of preemies to support parents of preemies (not NEC specific)
- The Morgan Leary Vaughan Fund: a public charity dedicated to NEC
Photography:
- Capturing Hopes Photography: documentary style professional photography to families with babies or children in the hospital.
- Now I Lay Me Down to Sleep: Providing the gift of remembrance photography for parents suffering the loss of a baby
- Preemie Prints: tiny footprints changing your life forever
Financial:
Housing related:
- Ronald McDonald House Charities: keeping families together to help kids heal and cope better
Short-gut Specific:
