If you have questions, please reach out to our coordinators. 

Coordinators

Leslie Napolitano (Leslie@NECsociety.org)
Lead Coordinator for the NEC Society

Heather Denchik, RN, BSN, OCN
Project Coordinator

Heather Tanner, MSA, BSBA
Project Coordinator

NEC Online Support Community

• NECsociety.Inspire.com

Special Interest Group in Necrotizing Enterocolitis (SIGNEC)

• SIGNEC is based in the United Kingdom and aims to facilitate knowledge sharing, networking and collaboration to optimize research and improvements in practice around the world.

Instituto Pequenos Grandes Guerreiros (Little Big Warriors Institute)

• PGG is based in Brazil offers psychological support to impacted families and works to promote NEC research, best practices and improved treatments.

Pasteurized Donor Milk for Vulnerable Infants:

• Human Milk Banking Association of North America
• Information for bereaved mothers who would like to donate their milk 

General Resources for Families:

• Patient Advocate Foundation: 501(c)3 organization that provides direct case management services and financial assistance to patients and caregivers.
• NICU Parent Network: NICU Parent Network is a coalition of organizations that serve NICU families.
• Graham’s Foundation: Created by parents of preemies to support parents of preemies (not NEC specific)
• Babywearing in the NICU
• Sister-Friend-Up
• Oley Foundation: Striving to enrich the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, and networking.
• TPN support: ThriveRx offers education, tools, and guidance to help individuals thrive on nutrition support.

Photography:

• Capturing Hopes Photography: documentary style professional photography to families with babies or children in the hospital. 
• Now I Lay Me Down to Sleep: Providing the gift of remembrance photography for parents suffering the loss of a baby
• Preemie Prints: tiny footprints changing your life forever

Short-gut Specific: