NEC Online Support Community

• NECsociety.Inspire.com

Special Interest Group in Necrotizing Enterocolitis (SIGNEC)

• The aim of SIGNEC is to facilitate knowledge sharing, networking and collaboration to optimize research and improvements in practice around the world.

Instituto Pequenos Grandes Guerreiros (Little Big Warriors Institute)

• PGG offers psychological support to impacted families and works to promote NEC research, best practices and improved treatments.

Pasteurized Donor Milk for Vulnerable Infants:

• Human Milk Banking Association of North America

General Resources for Families:

• Patient Advocate Foundation: 501(c)3 organization that provides direct case management services and financial assistance to patients and caregivers.
  
• Preemie Parent Alliance: Preemie Parent Alliance (PPA) is a network of organizations offering support to families of premature infants.
  
• Graham’s Foundation: Created by parents of preemies to support parents of preemies (not NEC specific)
  
• Babywearing in the NICU
  
• Sister-Friend-Up
  
• Oley Foundation: Striving to enrich the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, and networking.
  
• TPN support: ThriveRx offers education, tools, and guidance to help individuals thrive on nutrition support.

Photography:

• Capturing Hopes Photography: documentary style professional photography to families with babies or children in the hospital. 
  
• Now I Lay Me Down to Sleep: Providing the gift of remembrance photography for parents suffering the loss of a baby
  
• Preemie Prints: tiny footprints changing your life forever

Housing related:

• Ronald McDonald House Charities: keeping families together to help kids heal and cope better

Short-gut Specific: