20 ways to get involved with the NEC Society
Learn how you can help the NEC Society build a world without necrotizing enterocolitis by sharing resources, joining programs, collarborating on research, advocating for NEC Awareness and more!Â
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Share our resources created with the CHNC in your NICU
The NEC Society, in partnership with the Children’s Hospitals Neonatal Consortium (CHNC) NEC Focus Group, is proud to share resources on necrotizing enterocolitis (NEC) for NICU families and families impacted by NEC.
Request Family Resource Boxes in your NICU
The NEC Society offers resource boxes for families diagnosed with NEC or who have tragically lost their child to the disease.
The Recently Diagnosed Family Resource Box empowers families to learn more about NEC, advocate for their child, and connect with our community.
The Bereaved Family Resource Box was created for families who have tragically lost their child to NEC. Developed by bereaved families in the NEC Society community, this box provides a sense of comfort, peace, and connection.
Join the NEC Registry
The NEC Registry is a platform for patient-families impacted by NEC from around the world to share information about necrotizing enterocolitis
Share our storybook for bereaved families
Forever Our Little One is a storybook for bereaved families, written by NEC Society’s founder and Executive Director, Jennifer Canvasser, after she lost her little one, Micah, to NEC.Â
For more resources for bereaved families, click here.
Join our Research Incubator
With 175+ members, we are accelerating NEC research, by bringing together scientists & clinicians working in partnership with patient-families!
Join the Nurse Ambassadors
Nurse Ambassadors are committed to helping drive NEC research, education, and advocacy. Join our community of leaders to build a world without NEC.
May is NEC Awareness Month
We invite you to share how NEC has impacted your life and support the NEC Society by recognizing NEC Awareness Month.
Advocate for NEC Awareness Resolutions
Ten states and the United States Congress recognize May 17th as NEC Awareness Day or May as NEC Awareness Month.
Join us for the PAS NEC Club!
The NEC Club at the Pediatric Academic Societies meeting brings together clinicians, pateint-families, and stakeholders to build a world without NEC through research, education, and advocacy.Â
Champion a world without NEC
As an industry or nonprofit Champion, your organization is recognized as a dedicated partner to advancing research and advocacy to better understand, prevent, and treat necrotizing enterocolitis (NEC).
Run for a world without NEC
Join us in making a difference! Over 100 dedicated individuals have already run 26.2 miles to honor families affected by NEC. We’ve had advocates host countless community walks and events for the NEC Society, and people from across the globe proudly wear the NEC Society jersey.
We want YOU to be part of the movement. Join us in moving for a world without NEC.
Become a recurring donor
Recurring donations help to ensure that the NEC Society has the capacity to expand our reach and impact every month.Â
Host an event to raise support
Every event, from family benefits and walks to runs, golf outings, galas, dinner parties, barbecues, bake sales, garage sales, and beyond, plays a vital role in advancing the NEC Society’s mission.Â
Share your story
We share stories to show how real families and clinicians are affected by this devastating disease. Our stories demonstrate the urgency of our mission.
Collaborate with us on research projects
Ensure your research is prioritizing patient-centered solutions by collaborating with the NEC Society on your research projects.Â
Contact Erin Pryor, the NEC Society’s Research Director, erinpryor@NECsociety.org, to learn more.Â
Invite us to present at your institutions
Connect your community to the NEC Society and stay up-to-date on the latest NEC research, educaiton, and advocacy by inviting the NEC Society to present at your instituion.Â
Contact Erin Pryor, the NEC Society’s Research Director, erinpryor@NECsociety.org, to learn more.Â
Invite us to contribute to your publications
The NEC Society’s Scientific Council and Board is comprised of gobal experts in the NEC community.
To collaborate with us on publications, contact Erin Pryor, the NEC Society’s Research Director, erinpryor@NECsociety.org, to learn more.Â
Attend the 2027 NEC Symposium
Join us for the next NEC Symposium in San Diego on September 19-22, 2027.
Sign up for our email list to stay updated on announcements from the NEC Society.Â
Write an article for our website
Help us build a world without NEC by writing an article for the NEC Society’s news page on a topic that would benefit the NEC community.Â
Contact Sarah Piephoff, the NEC Society’s Communications Manager, Sarah@NECsociety.org, to learn more.Â
Invite us to attend your conferences
Invite us to share our resources and latest updates at your conferences to build a world without NEC!
Contact Sarah Piephoff, the NEC Society’s Communications Manager, Sarah@NECsociety.org, to learn more.Â
