Latest from the NEC Society

The latest updates and developments, family stories, and helpful resources for clinicians and patient-families.

Ronan

A father holds his premature baby against his chest for skin-to-skin contact, both connected to NICU breathing support.
During my time in the NICU, I did not reach out to my family and ...
Taylor and Jenn
While many friendships begin through shared interests, Taylor and Jenn’s friendship began through the NEC ...
Family who led the passing of the South Carolina NEC Awareness Resolution at the state capitol
Rep. Nathan Ballentine has introduced a state resolution recognizing May 17, 2025, as “Necrotizing Enterocolitis ...
Banner of people runnings races to help end NEC.
Teaming up with UC Davis Neonatal Intensive Care Unit, Davisite Jennifer Canvasser and her family ...
Jenn speaking at Stand Up For Science in Sacramento
Science is the path to a world where we understand NEC, can #preventNEC, and build ...
Jenn and Noah reading to Micah
Research has proven what we instinctively know: reading offers neuroprotective benefits to babies. When families ...
Jenn with Micah in the NICU
The NEC Society is committed to collaborating with healthcare providers and patient-families to facilitate NEC ...
Jenn giving Micah a kiss on his forehead
I created Rainbows to Remember Micah as a way to transform a day wrought with ...
Jenn and Micah
While it is important for us to emphasize how frequently NEC happens in the NICU, ...
Reed sleeping
We took turns holding Reed, pouring every ounce of love that we had into him ...
Dr. Hackam holding a baby in the hospital
“They don’t just suffer, they too often suffer alone.” Written by David J. Hackam, MD, ...
Staff grouped together holding NEC Society sign
The NEC Symposium brought together 200 participants from 9 countries and 35 US states to ...
Leslie and Jennifer holding Forever Our Little One and a picture of Micah
Forever Our Little One is a storybook for families to read together after the devastating ...
Dr. Allison Rose
The NEC Society is mourning the tragic loss of Dr. Allison Rose, who cared for ...
tree of courage painting
My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after ...
California Capital with building a world without NEC Sign
We chose May to be NEC Awareness Month because we will only build a world ...
Neonatal Probiotics Toolkit cover
The Toolkit is intended as a resource for clinicians in neonatal intensive care units seeking ...
Micah Life Celebration
Created by bereaved parents for bereaved parents. What we wish someone had told us when ...
baby in the NICU
The NEC Society is not involved in the litigation around formula and NEC because we ...
baby in the NICU
This story challenges the assumption that breast milk alone prevents NEC. It highlights the complexities ...
Ditya and Pabita
A mother’s journey through her daughter Ditya’s premature birth, NICU struggles, and the devastating impact ...
Matilda sleeping in bed
Matilda was born prematurely at 33 weeks alongside her identical twin sister, Charlotte, and initially ...
Staff grouped together holding NEC Society sign
In the past year, the NEC Society expanded its reach and influence globally, uniting families, ...
Baby sleeping in the hospital NICU
A single-cell atlas includes detailed information about individual cells and how these cells are different ...
baby in the NICU
Necrotizing enterocolitis (NEC) is a devastating intestinal disease that primarily affects premature infants. Necrotizing enterocolitis ...
NEC Biorepository Image
A single-cell atlas includes detailed information about individual cells and how these cells are different ...