Liam’s Story

Liam was born prematurely at 27 weeks gestation. Initially, Liam faced challenges with his lungs and heart, but doctors were able to stabilize him, giving his loving parents hope. However, Liam devastatingly developed NEC. Within a matter of hours, Liam’s condition was grave.

Liam was rushed into emergency surgery. Despite every effort to save him, Liam tragically passed away from NEC at 19 days old. 

“We share Liam’s story so that his short life may inspire the care, compassion, and science needed to protect other babies from NEC.”

Jennifer, Liam's mom

What Helped

  • Compassionate care from Liam’s care team
  • Having scheduled opportunities to meet privately with the attending physician kept us informed about Liam’s progress and potential obstacles

What Hurt

  • The emotional rollercoaster of the NICU 

What To Do

  • Advocate for the advancement of NEC research 

Stories to Inspire a World Without NEC

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