Resources for Bereaved Families
If you have lost your precious child, we hope you will find a sense of connection and community within the NEC Society. Our resources are built by families who have lost their own children to NEC, and reflect what we wish we would have known when our child passed away.
Support After Loss
Losing a child is devastating and unfathomable. You are never alone when you join the NEC Society’s community. Every family’s grief journey is different, and our resources, such as 10 Things for Bereaved Families to Know, are designed to help you navigate your path toward peace and connect with others who understand the depth of your loss.
Our Bereaved Family Resource Box was developed by bereaved families, and provides the information we wish we would have had when we lost our child.
The box supports families in the knowledge that they will always be their baby’s parent, and that their precious child will always be part of their life. Tree of Courage note cards and plantable seed paper, to plant in memory of their child, are also included. Request a bereaved family resource box.
More Resources Our Bereaved Families Have Found Helpful
- NEC Society Connects Facebook Group is a platform to help you connect with others who have been personally affected by necrotizing enterocolitis.
- Compassionate Friends is a support organization for families who have experienced child loss.
- The MISS Foundation provides resources to families who are grieving the loss of a child.
- Hand to Hold offers compassionate support and connects you with others who understand your unique grief.
- Still Standing is a magazine for those experiencing child loss and infertility.
- A Bed for My Heart is a website providing “A Place to Rest Your Grieving Heart”.
- Bereavement and breast milk resources for families after the devastating loss of their baby.
Storybooks for Bereaved Families
- Forever Our Little One is a storybook for bereaved families, written by NEC Society’s founder/executive director, Jennifer Canvasser, after she lost her little one, Micah, to NEC.
- The Goodbye Book by Todd Parr
- Ida, Always by Caron Levis
NEC Society Connects FaceBook Group
A private FaceBook group to help parents connect with others who have been personally affected by necrotizing enterocolitis. This group is exclusively for patient-families and a safe space for those impacted by NEC. To be admitted, you must share how you are personally connected to this disease.
Additional Resources
- 10 things for bereaved parents to know
- About NEC & the NEC Society for bereaved families.
- Donating milk as a bereaved mother
- Navigating grief after losing your child to NEC, created in partnership with the Children’s Hospitals Neonatal Consortium (CHNC) NEC Focus Group.
Articles by the NEC Society
This collection of articles is meant to support you, help you navigate your grief, and offer solace through the stories of others who understand the depth of your loss.
