Building a world without NEC for babies like Micah
Jenn and Noah’s son, Micah, tragically passed away from complications of NEC just before his first birthday.
Micah
Transformin Pain Into Power in Honor of Micah
When Micah passed away from necrotizing enterocolitis (NEC), Jenn and Noah felt isolated with nowhere to turn. They could not believe that an organization dedicated to NEC did not exist.
In 2014, they harnessed their grief to launch the NEC Society, which has grown into the world’s leading organization dedicated to building a world without this devastating disease.
Every gift we receive brings us closer to our vision – a world without NEC in honor of Micah and all babies like him.
“Losing Micah to NEC has compelled our family to give and do all we can to prevent this devastating disease. Together, with your support, we can move mountains.”
Jennifer Canvasser, Founder & Executive Director
Honoring Micah Through Storytelling
About the NEC Society
The NEC Society is the world’s leading nonprofit dedicated to necrotizing enterocolitis (NEC). NEC is a devastating intestinal disease that primarily affects premature and medically fragile infants. Tragically, NEC is a leading cause of death in neonatal intensive care units (NICUs).
The NEC Society is led by a global community of patient-families, clinicians, and scientists. Together, we are accelerating NEC research, education, and advocacy, and transforming what is possible for infants and families.
The NEC Society was launched in January of 2014 by Jennifer Canvasser after her son, Micah, died from complications of NEC just before his first birthday.
Inspired to start your own fundraising page?
Help us transform what is possible for babies and families. Fundraising is an opportunity to share your story, raise awareness, and provide the NEC Society with the necessary resources to fuel our work.
Your efforts help bring our vision—a world without NEC—closer to reality.
