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Jenn giving Micah a kiss on his forehead
  • Advocacy, Bereaved, Education

Rainbows to Remember Micah

I created Rainbows to Remember Micah as a way to transform a day wrought with ...
Jenn and Micah
  • Advocacy, Education

Rare is Everywhere

While it is important for us to emphasize how frequently NEC happens in the NICU, ...
Reed sleeping
  • Bereaved, Family Story

Remembering Reed

We took turns holding Reed, pouring every ounce of love that we had into him ...
Dr. Hackam holding a baby in the hospital
  • Advocacy, Education, Recently Diagnosed

Fighting the Phantom Menace of NEC

“They don’t just suffer, they too often suffer alone.” Written by David J. Hackam, MD, ...
Leslie and Jennifer holding Forever Our Little One and a picture of Micah
  • Advocacy, Bereaved, Family Story

Forever Our Little One

Forever Our Little One is a storybook for families to read together after the devastating ...
tree of courage painting
  • Advocacy, Bereaved, Family Story

The Story Behind the Tree of Courage Painting

My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after ...
California Capital with building a world without NEC Sign
  • Advocacy, Education, Policy

NEC Awareness Resolutions

We chose May to be NEC Awareness Month because we will only build a world ...
Jenn and Micah
  • Education, Family Story, Recently Diagnosed

10 Things All NICU Parents Need To Know

Created by parents of NICU babies impacted by NEC: what we wish we had known ...
Ditya and Pabita
  • Bereaved, Family Story

Honoring Ditya

A mother’s journey through her daughter Ditya’s premature birth, NICU struggles, and the devastating impact ...
Matilda sleeping in bed
  • Bereaved, Family Story

Honoring Matilda

Matilda was born prematurely at 33 weeks alongside her identical twin sister, Charlotte, and initially ...