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Dr. Hackam holding a baby in the hospital
  • Advocacy, Education, Recently Diagnosed

Fighting the Phantom Menace of NEC

“They don’t just suffer, they too often suffer alone.” Written by David J. Hackam, MD, ...
Jenn and Leslie with the book and a picture of Micah
  • Advocacy, Bereaved, Family Story

Forever Our Little One

Forever Our Little One is a storybook for families to read together after the devastating ...
tree of courage painting
  • Advocacy, Bereaved, Family Story

The Story Behind the Tree of Courage Painting

My grandson Micah developed necrotizing enterocolitis (NEC) when he was nearly six weeks old, after ...
Ditya and Pabita
  • Bereaved, Family Story

Love You Forever, Ditya

A mother’s journey through her daughter Ditya’s premature birth, NICU struggles, and the devastating impact ...
Matilda sleeping in bed
  • Bereaved, Family Story

Building a World without NEC for Matilda

Matilda was born prematurely at 33 weeks alongside her identical twin sister, Charlotte, and initially ...
Leyden in her Mother's arms
  • Bereaved, Family Story

Learning to Live after Losing Leyden

After losing her daughter Leyden to NEC, a mother reflects on the heartbreak and the ...
Jennifer Canvasser (Davis, CA), and Assemblymember Cecilia Aguiar-Curry
  • Advocacy, Education

CA Declares May 17 NEC Awareness Day

Sacramento, California – The Necrotizing Enterocolitis (NEC) Society is grateful to announce that California has ...

Let’s Turn Pain Into Power

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