I serve on the NEC Society’s PFAC because I am Nora’s mom. Nora was born just shy of 27 weeks after I was diagnosed with HELLP syndrome. During Nora’s first week in the NICU, she was strong and fierce. But, when she was seven days old, we got a call that changed our lives forever. We were told to rush to the hospital because Nora was sick. When we arrived, we were told she had a hole in her bowel, and our daughter was diagnosed with necrotizing enterocolitis. We had never even heard of NEC, and we’re not prepared for what happened next. Within hours, I watched helplessly as the life faded away from our beautiful little girl. I held Nora for the first and last time as she took her final breath in my arms. To honor our daughter, I am doing all I can to raise awareness about NEC and advance the NEC Society’s vision of a world without this cruel disease. I am honored to serve on the Patient-Family Advisory Council to advance research and protective care for all babies. Every family in the NICU should know about NEC. We will forever honor Nora by fighting for her and all babies affected by this disease.