Fundraise for a world without NEC

We are deeply grateful to everyone who chooses to fundraise for the NEC Society by creating a personal fundraising page. Your efforts help bring our mission—a world without NEC—closer to reality.

Honor a loved one & support the NEC Society

Many families and advocates choose to fundraise on behalf of the NEC Society to help build a world without this devastating disease. Fundraising is an incredibly impactful way to recognize a significant milestone or anniversary or honor a loved one.  

Fundraising is an opportunity to share your story, raise awareness, and provide the NEC Society with the necessary resources to fuel our work.

Have questions or need support? Reach out to Sarah@NECsociety.org 

How to Get Started

  1. Determine the most comfortable way to share how NEC affected your family or why you are advocating to build a world without NEC.
  2. Set a fundraising goal and communicate why you support the NEC Society, a tax- exempt nonprofit organization (EIN#: 46-4426455).
  3. We understand that fundraising can feel uncomfortable but remember that your friends, family, colleagues, and community want to support you.
  4. Be sure to tag the NEC Society (@necsociety) in all your communications and use the hashtag #preventNEC
A group of thirteen runners and supporters from the NEC Society pose together in front of large white CIM letters at the California International Marathon expo. They are smiling, wearing athletic gear or NEC Society shirts, and holding posters of babies impacted by NEC, along with a blue sign that reads, “Running 26.2 for the NEC Society: Building a world without NEC.”
Every year, runners from around the world fundraise for the NEC Society leading up to the California International Marathon

How the NEC Society Can Help

  1. Assist with creating a fundraising page.
  2. Provide guidance regarding logistics.
  3. If you plan to have an event, the NEC Society can help provide materials, like educational printouts, and personalized designs that include a QR code linking attendees to your donation page.

 

Have questions or need support? Reach out to sarah@necsociety.org 

Lemonade for Luna community event
Stephanie fundraises during NEC Awareness Month in honor of her daughter Luna, who tragically passed away from NEC

Host an Event for the NEC Society

Many families choose to organize local events to honor the children and families affected by NEC and spread awareness within their community.

We would love for you to host a family benefit, walk, run, golf outing, gala, dinner party, barbecue, bake sale, garage sale, and more!

Yoga event for NEC Society
Yoga event in honor of Rex, who tragically passed away from NEC.