Archives


NEC Society Welcomes Jacynta Brewton to Board of Directors

The NEC Society is honored to welcome Jacynta Brewton to the Board of Directors. Jacynta is a major gifts fundraiser at Emory University, and the Editor-in-Chief and Chief Operations Officer for Emerge Woman Magazine. She has served as National President…

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Human Milk and the Prevention of Necrotizing Enterocolitis

For premature and medically fragile babies, breast milk can be a lifesaving intervention. The NEC Society’s webinar series on human milk covered evidence-based practices for optimizing the use of human milk with babies at increased risk of NEC, as well…

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NEC Society Welcomes Dr. Jochen Profit to Scientific Advisory Council

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Dr. Jochen Profit to the organization’s Scientific Advisory Council. Dr. Profit is a neonatologist at the Lucile Packard Children’s Hospital at Stanford University and Chief Quality Officer for the…

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NEC Society Receives $250,000 Research Capacity Award

The NEC Society has received a $250,000 Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support the organization’s two-year research capacity building project. This PCORI award will advance the NEC Society’s ability to drive patient-centered outcomes research (PCOR)…

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Human Milk Fortifier in the NICU – we want to hear from you!

This survey closed on September 23, 2019. Please stay tuned as we analyze the results! The NEC Society launched a research project to gain a better understanding of how the label “Human Milk Fortifier” is used and interpreted by parents…

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NEC Society Board of Directors Gives Full-Term Cardiac NEC Families a Seat at the Table

The NEC Society is dedicated to building a world without necrotizing enterocolitis (NEC). While NEC often impacts babies born prematurely, the NEC Society’s patient-families have helped us to understand that NEC also affects babies born full-term, with congenital heart defects,…

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NEC Society Welcomes Amena Mebane to Board of Directors

Amena Mebane, Esq.

The NEC Society recognizes the importance of integrating patient-families into every aspect of our organization. At the NEC Society, patient-families co-lead research, co-chair meetings, and co-author manuscripts. Accordingly, the NEC Society is proud to welcome Amena Mebane to the organization’s…

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Fauna’s Story: 23 week triplets and Necrotizing Enterocolitis

By Fauna Osborne, NEC Society Leadership Committee member On April 3, 2012 our lives changed forever. I was 23 weeks 2 days pregnant and delivered triplets. Viability for survival is generally understood to start at 24 weeks. This is where…

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Dr. Hair encourages moms to donate breast milk, help save a baby from NEC

Written by Roseanne Moore, Texas Children’s Hospital What is supposed to be a joyous occasion – the birth of your baby – suddenly gives way to anxiety. While you know the next few months are critical to your premature infant’s…

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Mom Raises Awareness in Honor of Baby Boy

The NEC Society frequently shares stories of babies impacted by NEC- this is Kyran’s story. By Candace  Kyran was our rainbow baby. About six months before I conceived him I had had a miscarriage, with this and being overweight, I…

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