Category: NEC Society Blog


The NEC Society will be at the Preemie Parent Alliance Summit this weekend!

We are ready and excited to get to know all the other amazing organizations working on behalf of preemies and their families! Watch this space for updates as the weekend goes on. Learn more about the Summit here.

Read More

The NEC Society’s Vision: Together We Can Create a World Without NEC

The NEC Society is a non-profit, 501c3 organization dedicated to reducing the incidence of necrotizing enterocolitis (NEC) by bringing together NEC families, researchers, and clinicians, with community stakeholders, legislators, as well as other individuals and businesses, concerned about premature and medically fragile babies. Behind the NEC Society are…

Read More

10 Things All NICU Parents Need to Know

No one plans to become a parent of a fragile infant. When a baby is born prematurely, most parents are woefully unprepared for the journey through the Neonatal Intensive Care Unit (NICU). Infants in the NICU are often so fragile…

Read More

Meet Brentlee: a full-term baby affected by NEC

Written by Amber, Brentlee’s mom. It was an uneventful pregnancy. I had a little more stress than usual, but nothing I couldn’t handle. The delivery was uneventful as well. A scheduled C-section at 39 weeks. She came out crying and…

Read More

When Mother’s Milk Was All I Had to Give

I’ve been exclusively pumping for over two years. Neither of my twins could nurse at birth because they were born at 27 weeks gestation. I managed to establish a milk supply for twins by relying solely on a breast pump….

Read More

NEC Society and Best for Babes launches 1st Nationwide Miracle Milk™ Mother’s Day Stroll to Save Lives

The NEC Society and Best for Babes® Foundation announces another first for healthier moms and babies — the 1st Nationwide Miracle Milk™ Mother’s Day Stroll . On Saturday May 10, 2014, thousands of parents, friends, family and community members, will…

Read More

Necrotizing enterocolitis: a devastating digestive disease of premature babies

A friend of a friend of a friend introduced the NEC Society to a compassionate, committed neonatologist, Dr. Jessica Madden, based in Green Bay, WI. Throughout her career, Dr. Madden has witnessed NEC harm too many infants. As a neonatologist…

Read More

10 Incredible Gifts for NICU Families

Ideas to support families while they are in the NICU, from parents who have been there.

Read More

After losing son to NEC, a mother pushes for milk bank and starts NEC Society

We are grateful to the Detroit Free Press for helping us raise awareness about the devastating impacts of NEC. To increase our impact, please comment on the story, and then recommend, share, and like it. A Mom’s Journey through Grief…

Read More

Necrotizing enterocolitis killed my baby and claims the life of another baby every day. We’re coming together to prevent this deadly neonatal disease.

The first time I heard, “necrotizing enterocolitis” (NEC), my son Micah was critically ill. I tried desperately to keep myself together and listen as his healthcare team explained this deadly disease. But, all I could focus on was Micah. In…

Read More