Category: NEC Society Blog


First Annual Thank a Caregiver Event

Submit your caregiver today! On November 17, 2014, the NEC Society will host its first annual “Thank a Caregiver” event in honor of World Prematurity Day. Families from all over the world are invited to submit a photo of someone from their…

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Support the NEC Society with Goodsearch

A free and easy way to support the NEC Society! Please support the NEC Society by using Goodsearch! Sign up here to search the Internet with their Yahoo!-powered search engine (just like you’d search on any other search engine), and…

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Clifford’s Story

The NEC Society frequently shares stories of babies impacted by NEC; Clifford’s story is one. We went into our 19 week ultrasound hoping to learn if our first child would be a boy or a girl, and we came out…

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Non-Profit Launches to Protect Babies from Leading Cause of Infant Death

October is Infant Loss Awareness Month Ann Arbor, MI – With October being Infant Loss Awareness month, parents, clinicians, and researchers are launching the NEC Society, a non-profit dedicated to protecting babies from necrotizing enterocolitis (NEC). NEC is a leading…

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Big Data in the NICU

The NEC Society is at the Preemie Parent Alliance Summit in Phoenix, Arizona this weekend. We just heard a great talk from Dr. Alan Spitzer with MEDNAX/Pediatrix Medical Group on “Big Data in the NICU”. Their network of NICUs cares…

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The NEC Society will be at the Preemie Parent Alliance Summit this weekend!

We are ready and excited to get to know all the other amazing organizations working on behalf of preemies and their families! Watch this space for updates as the weekend goes on. Learn more about the Summit here.

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The NEC Society’s Vision: Together We Can Create a World Without NEC

The NEC Society is a non-profit, 501c3 organization dedicated to reducing the incidence of necrotizing enterocolitis (NEC) by bringing together NEC families, researchers, and clinicians, with community stakeholders, legislators, as well as other individuals and businesses, concerned about premature and medically fragile babies. Behind the NEC Society are…

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10 Things All NICU Parents Need to Know

No one plans to become a parent of a fragile infant. When a baby is born prematurely, most parents are woefully unprepared for the journey through the Neonatal Intensive Care Unit (NICU). Infants in the NICU are often so fragile…

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Meet Brentlee: a full-term baby affected by NEC

Written by Amber, Brentlee’s mom. It was an uneventful pregnancy. I had a little more stress than usual, but nothing I couldn’t handle. The delivery was uneventful as well. A scheduled C-section at 39 weeks. She came out crying and…

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When Mother’s Milk Was All I Had to Give

I’ve been exclusively pumping for over two years. Neither of my twins could nurse at birth because they were born at 27 weeks gestation. I managed to establish a milk supply for twins by relying solely on a breast pump….

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