Category: NEC Society Blog


Big Data in the NICU

The NEC Society is at the Preemie Parent Alliance Summit in Phoenix, Arizona this weekend. We just heard a great talk from Dr. Alan Spitzer with MEDNAX/Pediatrix Medical Group on “Big Data in the NICU”. Their network of NICUs cares…

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The NEC Society will be at the Preemie Parent Alliance Summit this weekend!

We are ready and excited to get to know all the other amazing organizations working on behalf of preemies and their families! Watch this space for updates as the weekend goes on. Learn more about the Summit here.

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The NEC Society’s Vision: Together We Can Create a World Without NEC

The NEC Society is a non-profit, 501c3 organization dedicated to reducing the incidence of necrotizing enterocolitis (NEC) by bringing together NEC families, researchers, and clinicians, with community stakeholders, legislators, as well as other individuals and businesses, concerned about premature and medically fragile babies. Behind the NEC Society are…

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10 Things All NICU Parents Need to Know

Published on the Huffington Post here. No one plans to become a parent of a fragile infant. When a baby is born prematurely, most parents are woefully unprepared for the journey through the Neonatal Intensive Care Unit (NICU). Infants in…

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Meet Brentlee: a full-term baby impacted by NEC

Written by Amber, Brentlee’s mom. It was an uneventful pregnancy. I had a little more stress than usual, but nothing I couldn’t handle. The delivery was uneventful as well. A scheduled C-section at 39 weeks. She came out crying and…

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When Mother’s Milk Was All I Had to Give

I’ve been exclusively pumping for over two years. Neither of my twins could nurse at birth because they were born at 27 weeks gestation. I managed to establish a milk supply for twins by relying solely on a breast pump….

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NEC Society and Best for Babes launches 1st Nationwide Miracle Milk™ Mother’s Day Stroll to Save Lives

The NEC Society and Best for Babes® Foundation announces another first for healthier moms and babies — the 1st Nationwide Miracle Milk™ Mother’s Day Stroll . On Saturday May 10, 2014, thousands of parents, friends, family and community members, will…

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Necrotizing enterocolitis: a devastating digestive disease of premature babies

A friend of a friend of a friend introduced the NEC Society to a compassionate, committed neonatologist, Dr. Jessica Madden, based in Green Bay, WI. Throughout her career, Dr. Madden has witnessed NEC harm too many infants. As a neonatologist…

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10 Incredible Gifts for NICU Families

Ideas to support families while they are in the NICU, from parents who have been there.

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After losing son to NEC, a mother pushes for milk bank and starts NEC Society

We are grateful to the Detroit Free Press for helping us raise awareness about the devastating impacts of NEC. To increase our impact, please comment on the story, and then recommend, share, and like it. A Mom’s Journey through Grief…

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