Category: NEC stories


Human Milk and the Prevention of Necrotizing Enterocolitis

For premature and medically fragile babies, breast milk can be a lifesaving intervention. The NEC Society’s webinar series on human milk covered evidence-based practices for optimizing the use of human milk with babies at increased risk of NEC, as well…

Read More

Learning to Live After Loss

Melissa Dlugolecki and Jennifer Canvasser share a love for running, healthy lifestyles, and green smoothies. But, unfortunately, that’s not what brought them together. Melissa and Jennifer each lost a child to necrotizing enterocolitis, and their children, Leyden and Micah, brought…

Read More

Working Through Infertility, NEC, and Child Loss as an L&D Nurse

Written by Julie Cavellini, Labor & Delivery nurse and mother of Brooks and Carys Cossey After struggling with infertility for years, I was ecstatic to finally be pregnant with my son, Brooks. After three rounds of IVF, I was willing to do…

Read More

From Three to One: Giving Birth to Triplets and Losing Two to NEC

Written by, Fannie, the mother of Keaton, Dorian and Aiden.  I always wanted twins. I was 38 years old, and had just married the love of my life. I left my home and my whole life in France – my…

Read More

Raising Awareness in Honor of Our Son

Written by Morrison and Dwight’s mother, Heather Driscoll After struggling with infertility for two years and spending thousands of dollars, we were finally pregnant. With twins. After all that pain and suffering, I smiled at the thought of being repaid with…

Read More

The Baby Boy Behind Brazil’s Instituto Pequenos Grandes Guerreiros

Written by Tom’s mama, Bia Rosito Antonio Rosito Robyn, our Tom, was born on a cool winter’s day on July 10th, in São Paulo- Brazil. Tom and his twin brother Daniel were born prematurely, after 32 weeks of gestation. Although small,…

Read More

VIDEO: Dr. Sylvester on the NEC Symposium

Read More

The Gift of Babywearing My NICU Babies

My twins’ premature birth was traumatizing. Micah and Zachary were born at 27 weeks gestation, weighing just over two pounds each. As the twins fought to live, our family and friends surrounded us with love and support. During the twins’…

Read More