What We Do

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication. The NEC Society is a non-profit, 501c3 organization,…

Woman and baby

Who We Are

The NEC Society is a 501(c)(3) nonprofit organization dedicated to building a world without necrotizing enterocolitis (NEC) through research, advocacy, and education. The NEC Society brings together patient-families, clinicians, and other diverse stakeholders to better understand, prevent, and treat this…


We need YOU to help us build a world without necrotizing enterocolitis. Together we can advance NEC research, education, and advocacy. Together we can prevent NEC and improve outcomes for our most vulnerable babies.


Webinar: NEC Surgery Trial (NEST) Results

The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar will feature Dr. Martin Blakely, who led the NEST work, along with a panel of experts. Registration…

Probiotics & NEC: Family-Clinician Communication is Key

Please visit NECcsociety.org/probiotics for the NEC Society’s Statement on Probiotics.

We’re hiring! Apply to join our team!

The NEC Society is hiring a Fundraising Manager! Please review the details and instructions below for more information. Thank you for believing in our vision of a world without necrotizing enterocolitis! About the NEC SocietyThe Necrotizing Enterocolitis (NEC) Society is…

9 Things You Need to Know About Necrotizing Enterocolitis

Written by Jennifer Canvasser, founder and director of the NEC Society When my son Micah was six weeks old, I thought he had overcome his fiercest battles that are common to babies born at 27 weeks gestation. He had doubled his birth…

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Living With NEC: A Survivor’s Experience

Lakevia is grateful to have survived this terrifying disease but continues to live with its consequences- she shares her story.

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How to Optimize the Use of Mother’s Own Milk in the NICU

Written by Dr. Meg Parker, Associate Professor of Pediatrics at Boston Medical Center, Boston University School of Medicine In the NICU, mother’s breast milk is medicine for very premature infants. Mother’s breast milk has a multitude of nutritional and immune…

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