We are honored and grateful to share that the NEC Society has been awarded $150,000 as part of our participation in the Chan Zuckerberg Initiative’s Rare As One Network. The NEC Society was selected to join the CZI Rare As One Network in early 2020 with an initial award of $450,000. Over the past two years, the NEC Society has worked tirelessly to strengthen our organizational capacity, develop a research network, convene the NEC research community, and align our community’s research priorities. The NEC Society is one of 50 patient-led rare disease organizations that make up the Rare As One Network.
This $150,000 award will allow the NEC Society to continue to expand our reach and impact by accelerating NEC research, education, and advocacy. Jennifer Canvasser, Founder and Executive Director, shares, “The NEC Society is still a young, small nonprofit organization. We have ambitious plans and an audacious vision. We are working to build a world without this devastating neonatal disease so that babies like Micah, Sarah, Makenna, Leyden, and too many other little ones who died because of NEC, can not only survive but thrive at home in their families’ loving arms. We intimately understand the menacing nature of necrotizing enterocolitis and we are compelled to use our collective grief, resources, and skills to prevent NEC and improve outcomes.”
Participating in the CZI Rare As One Network has been transformative for the NEC Society. Through CZI’s generous support, we have built a talented team of Board, Staff, and Council members, and together we are advancing the NEC Society’s mission at an unprecedented rate. We already have several exciting projects in the pipeline, which will be announced in the coming months. We hope you’ll stay tuned and support us so we can continue to build our vision of a world without NEC.