NEC Society Launches Research Project on Long-Term Outcomes of NEC

Thanks to our incredible patient-family community, we are proud to launch this survey that seeks to understand how NEC affects children, families, and young adult NEC survivors, years after their original NEC diagnosis. 

For parents/caregivers of children diagnosed with NEC who are interested in participating, please review the survey information sheet using this link.

For adult NEC survivors 18y/o+ who are interested in participating, please review the survey information sheet using this link.

We are grateful to the team who helped to make this research project possible! Thank you for sharing your experiences, expertise, and insight!

This research study is being led by Jennifer Canvasser MSW from the NEC Society and James Harrison PhD from the Department of Medicine at the University of California San Francisco. If you have questions regarding this survey, please review the information sheets linked above, which include contact information. Thank you!

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