NEC Society Launches Research Project on Long-Term Outcomes of NEC

We are grateful to our patient-family community who helped to build and launch this research project, and who took the time to respond by sharing their family’s personal experience with NEC. This project seeks to understand how NEC affects children, families, and young adult NEC survivors, years after their original NEC diagnosis. 

We have closed the survey so we can begin analyzing the data. Please check back in the coming months for an update! 

The recording and slides from our webinar on the Long Term Outcomes of NEC are available. 

We are grateful to the team who helped to make this research project possible! Thank you for sharing your experiences, expertise, and insight!

This research study is being led by Jennifer Canvasser MSW from the NEC Society and James Harrison PhD from the Department of Medicine at the University of California San Francisco. If you have questions regarding this survey, please email Thank you!

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