The Necrotizing Enterocolitis (NEC) Society is proud to welcome Linseigh Green to the Board of Directors. The Board oversees the organization’s operations, projects, and research, while working to ensure they align with the NEC Society’s vision and values. The Board is comprised of diverse stakeholders who are compelled to support the organization in building a more just, equitable world without NEC.
Linseigh Green survived NEC as an infant in 1997 and realized she had long-term complications from the disease when she was 16 years old. As a sophomore at New York University, she became desperate to find a community that could understand her isolating experience with long-term complications of NEC. Not only did Linseigh find the NEC Society– a community that certainly understands her experience — she found her voice. Now, Linseigh is able to help raise awareness, drive research, and advance the needs of patients. Linseigh shares, “To have a condition and be involved in an effort to address said condition is the most empowering privilege a patient can have. You see for yourself how people are actively trying to help families like yours, and that gives you so much hope.”
Of course, Linseigh is not just a patient. An alumna of NYU’s Gallatin School of Individualized Study (BA Social Impact Storytelling ‘19) and a current Creative Writing MSt student at the University of Cambridge, she is a devotee of stories that promote empathy within and between communities. Her experimentation with subject and form has led to projects such as an audio portrait on the racialization of real estate, a transmedia narrative on the social media panopticon, and an oral history dissertation scrutinizing the ethics of plantation resorts and weddings. In addition, she is an artist in residence at the Orchard Project’s Liveness Lab, a transmedia performance initiative.
Jennifer Canvasser, Founder and Director of the NEC Society, notes, “Linseigh is an inspiring advocate and brings a critical perspective to our organization’s vision. She’s been actively involved with the NEC Society since 2018 and we are beyond thrilled to formalize her role within our team.”
The NEC Society is led by patient-families working hand-in-hand with renowned scientists and clinicians. NEC is a severe intestinal disease that affects thousands of babies each year in the United States. Approximately 30% of the babies who are diagnosed with NEC die within hours or days of their diagnosis. The NEC Society aims to unite diverse stakeholders and accelerate research to improve prevention and treatment options for vulnerable infants. You can become part of our movement by following us on social media, subscribing to our blog, and joining our email list.