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Forever Our Little One – a storybook for bereaved families

Click here to watch the KCRA News Interview featuring Forever Our Little One. Click play & listen to CapRadio NPR interview with Jennifer Canvasser. Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One,…

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NEC Society – FDA meeting on probiotics

The NEC Society is a 501(c)(3) organization dedicated to advancing NEC research, education, and advocacy. Since our founder, Jennifer Canvasser, lost her son Micah to complications of NEC, the organization has been fortunate to receive funding from the Patient-Centered Outcomes…

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Neonatal Probiotics

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Grandparents holding Grandbabies in their hearts

Written by Judith Mehl – first-time granny to Gali Ari Rotem September 10 is Grandparents Day, and as a first-time granny I should be elated. But instead, my family is in deep sorrow… My husband, Ken, and I were awoken…

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NEC Society Welcomes New Board Members

The NEC Society, a 501(c)(3) patient-led organization, is honored to welcome Martin Blakely, MD, MS and Simone Rosito, MA to the organization’s Board of Directors. Martin Blakely is a pediatric surgeon and scientist who has dedicated his career to understanding and improving outcomes…

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Forever Our Little One – a storybook for bereaved families

Davis, CA – Mother-daughter duo Jennifer Canvasser and Leslie Napolitano have published Forever Our Little One, a storybook for bereaved families. Jennifer is the executive director of the Necrotizing Enterocolitis (NEC) Society, which she founded after her son Micah tragically…

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Research That Matters to Patients

By Linseigh Green, NEC Society Outreach Manager After graduating from NYU, the NEC Society invited me to share my story of growing up as a NEC survivor. At the 2019 NEC Symposium, I told the ballroom full of clinicians about…

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NEC Society Welcomes Development Director!

The NEC Society is thrilled to welcome Julia Goldstein as our Development Director. Julia has over 20 years of professional fundraising experience in the nonprofit sector, as well as a deeply personal appreciation for the power of giving. Julia was…

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Running for a World without NEC

The NEC Society’s running team completed the 2021 California International Marathon in honor of families affected by necrotizing enterocolitis. We completed CIM for our sons, daughters, friends, and loved ones – they are stronger than any marathoner and their stories…

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Webinar: NEC Surgery Trial (NEST) Results

The Necrotizing Enterocolitis Surgery Trial (NEST) aimed to understand which surgical treatments lead to improved outcomes for babies with NEC. This 90-minute webinar featured Dr. Martin Blakely, who led the NEST work, along with a panel of experts. The recording…

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